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(1 replies, posted in Chemotherapy)

My mom was diagnosed with Cholangiocarcinoma with mets to her liver 12/13 and began treatment 1/13. She has had one round of sphere radiation to her liver at UNC and was rescanned 4/13 and saw that her large tumors in her liver were shrinking but her small tumors were growing. Weird b/c she has been receiving treatment for Cholangiocarcinoma with Cisplatin and Gemcitabine. She began a research trial through Johns Hopkins with a company called Cellpath Therapeutics in which they took a sample of her blood and tested her cancer cells against several different chemo drugs. Her results came back and it looks like Irinotecan was the most sensitive (effective) as well as Pemetrexed. It is a little confusing because Irinotecan is used primarily for colorectal cancer and Pemetrexed is used for Lung Ca. Have you all had any experience with the usage of these meds for the treatment of cholangiocarcinoma or liver ca?  Thanks

Allison Pearce

My mother was recently diagnosed with Cholangiocarcinoma in 12/12.  After doing research on this type of cancer I have seen that it is a rare form of cancer that still needs a great deal of research and funding.  I am interested in making a website that is in honor of my mother but will raise awareness to this type cancer.  I would prefer all the funds go directly to the research/treatment of cholangiocarcinoma. Is there a foundation or specific website that I could go to that will make it easy for me to create an acct/website to begin this?  I was thinking of doing a webpage for the Relay for Life but I don't know how much money would specifically go towards cholangiocarcinoma research.  Any suggestions or information regarding this would be much appreciated.




Thank You,



Allison Pearce