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La fundación de colangiocarcinoma (CCF) ahora ofrece servicios de traducción en Español.
Por favor publique sus preguntas en Español y un intérprete le va responder.
Due to recent news about new cancer treatments, CCF is gathering information about your experience with genetic testing of your tumor. Whether you have or have not
had any genetic testing it is important to answer the questions to help us make progress in cancer research.
Take the Survey
Posts found: 5
Clare I am so sorry for the loss of your sister.
Pam thank you! All the best to you. I look forward to be part of the community.
Lainy, thank you for your support. Also posted on the foundation calendar and the loose leaf notebook is a walk to raise money and awareness that my wife Brooke and myself organize. This will be our third walk on March 30th. All funds are sent to the foundation. We Hike for HOPE.
My journey with CC started May of 2009. Was feeling off and turning yellow. Was sent for CT scans and MRI. Next visit was to the local hospital for a endoscope and a stent placement. They tried for three hours to get around the tumor and threw in the towel. I spent that Memorial Weekend in the hospital with Pancreatitis. In the long run this was the best thing because I was sent to Yale New Haven Hospital. There I was placed with a team of Doctors. Doctor Salem was the main physician and head of surgery. I had a liver resection, 30%. Spent eleven days in the hospital because of an infection. Was sent home with a drain because of the infection. This was taken out a week or so later. I was diagnosed with stage IB. Recovery was slow but steady. About a month after I was sent to Dr. Jill Lacy who would be my Oncologist. Had about six months of Adjuvant Therapy. The cocktail was Cisplatin and Gemcitabine. With a few bumps here and there we as a family got through it. Follow up was blood test every three months with CT scans every six months. This has been changed to just scans every six month with my next one this April. I live every moment knowing how fortunate I have been.
Thank you for sharing. That was truly touching and amazing. It had hit a special cord for me. I had just acquired a 1952 Willys Jeep to restore. Now every moment spent restoring will be thoughts of your son. I'm coming up on four years as a survivor. I wish you and your family all my love.
Posts found: 5