Our family has tried to live a normal life lately and to be honest I really didnt wish to think about this terribile disease for a while.
However I wish to provide an update on my dad.
Unfortunately after the GemCisplatin and Panitumuab trial which gave us stabel disease for close to a year he has tried FOLFOX (6 weeks only and progression on CT scan), Abraxane (3 cycles and progression on CT scan).
His last CT scan last week shows two liver lesions a 5 cm one and a 3 cm one. Interestly we cant see his lymph nodes anymore.
His oncologist is suggest a Phase I trial with a met inhibitor. I believe this is similar to the the Lily drug that Kris is on.
https://clinicaltrials.gov/ct2/show/NCT … mp;rank=12
I have asked that his oncologist review his case at the next mutli disciplinary meeting as I would also like to understand if we could consider any local treatment options. I know they are not a cure however if it could give us some quality time we would be happy.
Kris; to enter the trial did you need a cMET mutation as they are not testing this (and from his gene testing he did not have this so I am wondering if it would really help).
I am a bit lost and dont know what to do.
Is it strange to miss people you have never met ....... as sometimes I think of Percy and I really feel that I miss his helpful and touching suggestions......
All my respect to the moderators on this board. I am sure it is not easy.