I live and work in London and currently in India to see through my moms treatment.
My mother is still in the ICU battling some post operative complications from Whipple's surgery.
She went to the doctor on 20th Feb with painless jaundice (probably after a week of minor symptoms appearing). Even though it was a doctor in a small town in India (not Mumbai), they immediately asked for an ultrasound be done. Based on that the doc recommended further testing (MRCP). We then moved to Mumbai and MRCP, CT, Endoscopic Ultrasound and PET/CT Scan showed Distal Bile duct Cholangiocarcinoma. (FNAC was negative during surgery)
Dr. Jagannath is a well known surgeon (probably the best) in India in Hepato billiary oncology. He figured it was resectable and conducted the Whipple's surgery on 18th March 2013.
Because she had bilirubin levels around 6 during operation, as no stenting was done, the recovery is taking time.
I saw the biopsy report yesterday. It says stage is PT3N1 - 9/20 peripancreatic lymph nodes are metastatic. The tumor had started spreading to pancreas with mild differentiation seen. Although the margins are free of tumor with closest margin on pancreas 1 mm.
We are just hoping and praying for her recovery from the surgery and then think about the next steps. Not sure what the prognosis is at this stage (statistically very depressing I think) but we will fight till the last option available!
I guess the next steps for me are:
1. Take second/third opinions on all reports
2. Plan for chemotherapy etc..
3. Prepare for the expenses and plan relocation as per 1 and 2..
Will appreciate any comments / information on the above.
Thanks everyone for being so amazing and for the people who put this site up.. it is a relief that I can find knowledgeable opinion from around the world here..