I have to say that we DID do a lot of research on Y 90 and I have
to say that I asked for people's advice, help and personal stories
(of which we got the 2 or 3 you mentioned.)
Here, on this board. TWICE.
I should probably leave well enough alone but OUR HUGE
frustration with this board is that we come here seeking
advice and help and opinions from people who are going through
almost each and every time I post a question, hardly anyone
answers (which of course is not very helpful)
when we ask for "real life stories", almost no one ever answers.
We are almost always pointed in the direction of hard to understand
and complicated medical journals which are not helpful to "lay people"
like us. I'm sorry that we're not as smart as some of you here on
Which is why we come looking for practical help--real answers
from real people fighting this cancer. And mostly I feel we
get a lot of fluff and silence. (After speaking with 4 doctors FIRST)
I truly and sincerely wish that more people, REAL PEOPLE, would
pipe in with advice, personal stories and helpful answers of
WHAT THEY EXPERIENCED.
I feel extremely frustrated that IF Y 90 is a "last resort" and
has almost all "bad outcomes" that when I asked weeks and weeks
ago, SOME ONE WOULD HAVE BEEN KIND ENOUGH OR BOLD
ENOUGH TO ANSWER MY QUESTION HONESTLY.
We come here making (LITERALLY) life and death decisions
for people we love, looking for help--and (I personally) don't
feel like I find very many answers here.
Sorry for the vent...feeling VERY (!!) frustrated that we have now
done a "bad thing, last resort thing with almost all bad
results" on my husband....
And the one place where I could have found some real life
HELP---and no one felt obligated or like helping us BEFORE hand
when we were BEGGING for some good answers to help
make this decision.