He also has lymph node involvement. From the start they said he was not a candidate for surgery. He is going to Mayo so I trust them.
This is what I found online:
Periampullary tumours are those that arise within 2 cm of the ampulla of Vater in the duodenum
Tumours that fall under this group includes four main types of tumours 1,4
• pancreatic head / uncinate process tumours - includes pancreatic ductal adenocarcinoma involving head and uncinate process of the pancreas
•lower common bile duct tumours - includes types of cholangiocarcinoma involving the intra-pancreatic distal bile duct
• ampullary tumours - those originating from the ampulla of Vater itself
•periampullary duodenal carcinoma
Although patients with periampullary tumors have similar symptoms at presentation, they exhibit different clinical outcomes according to the origin of these tumours.
No I don't know how they made the decision. My dad is in MN and I am in TX. I thought my dad said they think it came from the gallbladder or something. He has lymph node involvement but no other masses. They said they can't do surgery....he is on palliative care. Gem/Cis every other week and replacing his stent every 3 months. He is tolerating it well and after his first 2 months the tumor shrank from 2.5 to 1.7 cm. Now it is stable at that size for about 5 months.
In reality...the cancer could be pancreatic and invaded the bile duct? I am just trying to wrap my head around this.
So my dad sent me his results. It is stating that a periampullary mass decreased from 2.7 cm to 1.8cm.
Is Periampullary Mass considered pancreatic cancer or bile duct cancer?
My dad had a ct scan. They said it looked stable however they are replacing the stent every 3 months.
They are changing his chemo to 2 weeks on one week off to chemo every other week. I guess because his veins are getting harder to find. He is about 7 months out from his diagnosis and is tolerating chemo well.
My question is...do some just stay stable on chemo for years?
My dad is going gem cis and has not had any side effects. He actually says he feels better after chemo (because they give him steroids). He has been on this regimen since May 2013 with no side effects.
My dad said they will stop chemo for a while to see what the cancer does. Has anyone done this?
He is having to replace his stent every 3 months and after the stent placement last time, he was in pain and bloated for 3 weeks.
Is having to have the stents replaced so often a bad sign?
Re: Newly diagnosed with bile duct cancer - some input will be useful (9 replies, posted in General Discussion)
My dad is doing 2/1 regimen with Gem/Cis. He is not able to have surgery.
My advice is to write a list of questions you have and give it to the doctor for him to WRITE the answers along with telling you. That way you can re-read them.
Remember...the doctor is working for you. You can ask him questions whenever you have them and if you have a problem or don't understand ask again.
I have no idea. My dad smokes and he got it...
He has always had good blood work and never has been sick. It is so strange. My dad is 66 and just retired then got the diagnosis. Life is not fair.
So my dad had to skip chemo due to low blood count. I guess he missed a week maybe 2...well the stent was blocked. I heard from another source that my dad talked to the doctor and he feels the stent was encapsulated by the cancer due to the lack of chemo. Huh? It can grow that fast and block the stent? I don't believe it. It seemed my dads urine turned rust colored...he made an apt they decided to go in and add another stent...the day of surgery his urine was normal.
My dad is on gem/cis. They said he will continue it until it doesn't work anymore.
I just found out my dad's metal stent got clogged. His urine changed color then he began to itch. They made an apt to replace the stent then it seemed to unclog. They still put a plastic stent inside the metal one.
Can they just clog and unclog like that? Is this bad that it is clogging...meaning progression of disease?
My dad was diagnosed in April of this year. His cancer involved lymph nodes so no surgery.
His first CT scan showed shrinkage of the tumors...Yeah.
His second CT (3 weeks ago) showed no change....Yeah. The doctors assistant said there was a spot on his bladder that they think is not significant.
Well yesterday my dad got a letter saying they scheduled a cystoscopy to look at the spot. My dad is upset. He called me. He wants to talk to the doctor before doing any of this. I agree. Evidently the spot was there on his first CT scan also. My dad is saying if the bile duct cancer is the thing that is going to do him in he would rather not treat the bladder cancer (if that is what it is). Personally I agree. He is mad that the doctor hasn't met with him. I also agree. I told him to call the doc and tell them he isn't going to do anything until he talks to a doc. I told him that he can also tell them he wants to wait for his next CT scan to see if it gets bigger or stays the same...his next CT scan is in 3 months.
Has anyone ever had this happen where they just schedule something without a consultation? I told him he is doing so well when they thought he had a few months they are now looking at everything! Another thing...since he has lymph node involvement I would think that looking at this other stuff is a mute point.
My dad had his second CT scan. The first one in June showed shrinkage...this one shows no growth no new cancer...STABLE!
This is great. At his diagnosis he was told to get his affairs in order. Now we are looking forward to Christmas together.
Topic: Lifestyle Change for Those Surrounding Cholangiocarcinoma (6 replies, posted in General Discussion)
Has anyone done a lifestyle change due to someone close to you having this? I have to admit I like my daily glass of wine (or 2). I don't smoke, am not overweight....but I still feel that I am going to get this because my dad has it.
Does anyone know when chemo resistence tends to rear it's ugly head?
My dad's tumor shrank and I know that the statistics can vary with people but with inoperable Cholangiocarcinoma on average what is the survival? He was diagnosed in April of this year.
My dad is going to Mayo....he is in Minnesota. He likes the doctors and they know what they are talking about.
My dad just had his CT scan after 9 weeks of treatment.
The doc said his results were fan-darn-tastic. His main tumor shrunk by 2mm and there were no new mets!
He is so happy and so are we all!!!!!
He is doing Gem/Cis for his chemo.
Well on the study front, I work for a Contract Research Organization...we do drug studies so I am up on that type of information. They suggested a study for my dad but it was only a Phase I and we wanted to go the standard treatment route
My dad is going to have 2 more weeks of chemo then do a CT scan. I have some questions.
Will they continue chemo regardless of whether the tumor shrinks or doesn't shrink? If it didn't shrink will they change chemo or are we just done?
My father (66) is going to Mayo in Rochester for his treatment. His too is inoperable. He is on Gem/Cis...He does Gem/Cis one week, the next week Gem, the next week off.
He is tolerating the chemo very well. He hasn't gotten sick at all.
Just an FYI. My father has been on Gem/Cis for his Choliangiocarcinoma...he hasn't been sick at all!
I thought he would get sick and tired after reading about chemo...he is doing fine. The first treatment was the most difficult in that he didn't know what to expect. After he found he wasn't getting sick he has had no problems.
I told my dad this was pretty common. He felt better about that. He also said that maybe the chemo was too strong and they would lessen the dose or something.
My dad had his first chemo last week. He was supposed to have it this Wednesday but his blood count was too low. What do they do? Since next week is his off week, will they give it to him then or wait until his next cycle?
My dad had his first chemo treatment today. Gem/Cis....
He says he feels fine and feels just the same as he did before treatment. They gave him some antinausea medicine to take if he starts getting sick. They gave him some before his treatment.
At least I can plan my trip around his chemo now.