I have been reading through the posts now for a few weeks, trying to piece together as much information as I can. This site is amazing, and it is wonderful to see such caring people sharing support with each other. I am truly sorry for all you have experienced.
My father was diagnosed on February 1st of this year. He initially presented with acute jaundice and itching. After diagnosis, he chose not to pursue any treatments, but he did receive a plastic stent via ECRP, in March. That alleviated the itching and jaundice. Two-three weeks ago he started presenting with jaundice again, but this time no itching. I told him he needs to get his stent replaced, but he is not interested. I spoke with his doctor, and they said they could call in antibiotics if we wanted, but he would need to go in for a blood test first. He does not care to do that either. His jaundice is worse this time than last, but again, no itching.
The fatigue has really gotten to him this time. It is sad to watch, and feel helpless. He says he is not ready to let hospice come in either, and has asked us to respect his decisions. While trying to do that, it is hard not knowing what we need to look out for, or do to make things easier. Overall, Dad is staying in good spirits, although yesterday he was noticably more withdrawn. Any advice, good or bad, is welcome. Hoping he lets hospice in soon, that will take some of the burden off of us, not knowing how to help. Thank you in advance.....you all have already helped tremendously!