I'm Christine and my husband was diagnosed with CC on 4/22. Completely devastating as he is so very healthy otherwise and always hyper vigilant with his health. We feel blindsided with this diagnosis as we weren't really given a chance to discover it sooner, it presented with upper right stomach pain only after it had basically engulfed his liver.
Anyway, we just spent a week in Rochester,MN at Mayo. What an amazing place. Unfortunately, he is not a liver transplant candidate. Our course of treatment is going to be Therasphere and then chemo. We will be going back to Mayo for this treatment. Does anyone have experience with this? He has already had his mapping angiogram.
Another question I have is that although we haven't started treatment, he is extremely tired and sleeps a lot. I expect this after treatment but is this also just a sign of this hateful disease? We have three kids and this just isn't their daddy. .
Ok, thanks...nice to "meet" all of you