You are not logged in. Please login or register.
|La fundación de colangiocarcinoma (CCF) ahora ofrece servicios de traducción en Español.
Por favor publique sus preguntas en Español y un intérprete le va responder.
Help us reach our $20,000 goal!
Join our new Mentoring Program
Posts found: 2
Lainy and PCL1029
Thank you for your posts
I will look into IRE
I realise I left out my age on the previous post.I am 68yrs old married with a loving supportive wife who has been my mainstay
From reading other post I realise this is a very supportive and informative forum for a poorly understood disease
I was diagnosed with cc in may 2010 and my tumour resected by a Whipples procedure.Unfortunately there was a positive microscopic pancreatic margin
Post surgery I had two x chemo cycles of capecytabine/gemfibrazole/cisplatin/rubeomycin separated by a course of radiotherapy to the positive margin.
After this treatment I returned to normal life to the extent of swimming up to 3kms 4x/week and jogging up to 8kms 3x/week....I am still doing this.
However 2 weeks ago out of the blue I had a minor episode of pancreatitis which is thought due to pancreatic duct stenosis after radiotherapy.
but the CAT scan and then a PET has shown up three metastases in my lungs..2 in one and one in the other..these are in the lower lobes and amenable to microwave ablation. As a further complication there is one hilar lymph node in the left lung rather close to the pulmonary vein.As a result the interventional onchologist is reluctant to treat the mets.On Monday I am seeing a cardiothoracic surgeon to discuss possible surgical resection possibly with a microwave ablation on the non lymph gland affected side.
My onchologist has offered further chemo if I become symptomatic
I would be pleased if anyone on the forum has any advice or experience similar to mine.I feel that I would consider any life-extending procedures or treatment particularly as my other bodily health is so good
Posts found: 2