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La fundación de colangiocarcinoma (CCF) ahora ofrece servicios de traducción en Español. Por favor publique sus preguntas en Español y un intérprete le va responder.
Posts found: 12
Thanks for your response. Not sure if my research is correct but the 5 year survival stats for pc even in stage 1 is 14% while for CC is about 40%.
My mom is actually healing really well. She only lost about 5 pounds from the surgery and her appetite is slowly coming back. As you mention before that Teddy was a chocoholic but after the surgery he couldn't stand chocolate. Same thing happen to my mom, she use to love chinese food and now she can't stand it.
I hate this waiting game, over a month and still no pathology report!
About a month ago my mom had the whipple surgery to remove a tumor. Initially the oncologist diagnosed her with CC after doing multiple test such as ERCP, biopsy, and mrcp. About a few days ago we were hoping to get the pathology report but we were told that their is a delay. The surgeon then explain to us that from what he seen in the OR he believes that tumor is from the pancreas. After doing some research, I found that the prognosis for pc is worst than CC. My question is, do you think the surgeon is right. Has this happen to someone on this board?
My mom had her whipple surgery at the University of Alberta hospital in Edmonton, Alberta Canada
Her surgeon is Dr. Norman Kneteman
congrats Randi! you are an inspiration to us all
Thanks everyone for the kinds words.
P.S. btw I'm actually her son lol
Thanks Marions, I will keep you guys posted
My mom had her surgery (whipple) on Wed, Aug. 7th. She went into surgery at 7:20 am, and came out of recovery at 6:00 pm. The doctor said that the surgery was a difficult surgery because of her past surgery (her gullbladder was removed 15+ years ago), as the previous doctor did not do a good job (there was a lot of scar tissue). In addition, she had pancreatitis around the tumor and also they had to remove a large vein, and reconstruct it. She's doing well now, and has been walking daily with the nurse. We are all glad that the surgery is over (4 weeks waiting) and now we have to wait 2 more weeks for the pathology results.
Thank you for your message.
My mom had her surgery on Wed, Aug. 7th. She went into surgery at 7:20 am, and came out of recovery at 6:00 pm. The doctor said that the surgery was a difficult surgery because of her past surgery (her gullbladder was removed 15+ years ago), as the previous doctor did not do a good job (there was scar tissue). In addition, she had pancreatitis around the tumor and also they had to remove a large vein, and reconstruct it. She's doing well now, and has been walking daily with the nurse. We are all glad that the surgery is over (4 weeks waiting) and now we have to wait 2 more weeks for the pathology results.
My mom has cc and I worry as well since I was diagnosed with ulcerative colitis
Thanks everyone. @ Marion Yes we are very fortunate to have caught this disease early and that surgery is possible. I am so glad I found this forum and the great people on this board. @ Lainy my mom will be having her surgery at the University of Alberta hospital by Dr. Kneteman. @ Heather, Wishing your husband a successful surgery! Keep us posted!
P.S. I have donated $100 to this cause in the honor of my mother.
About a week ago my wife noticed my mom who is 66 years had some yellowing in her eyes and immediately we took her to the doctor and her blood was taken. The next day the doctor called her in and a ultrasound was performed. That is when we found out that there is an obstruction in her bile duct and a ctscan was needed. The next day the ctscan results came back and the doctor believed it was a gallstone even though her gall bladder was removed 15 years ago. The next day she had a ERCP and that is when we found out that it wasn't a gall stone but a tumor and a stent was placed in along with a biopsy. The oncologist said the that the tumor could be benign but is waiting for the lab results from the biopsy. The next day the oncologist broke the news to us that the tumor is malignant and that she is diagnosed with cc. My world stopped and after doing some research on the internet I was devastated to find out that this is a rare disease and that the survival rate doesn't look very good. I was very depressed and sad because my mom means the world to me. She would work 7 days just so she can provide for my brother and I. Thankfully I found this forum and the awesome people that post here. The very next day my mom had a MRCP and that is when the oncologist told us that the cancer is in its early stage and that the cancer has not spread into the major lymph nodes. I was so HAPPY and RELIEVED and I was able to sleep that night. Today we had a meeting with the surgeon and that is when he told us that from all the procedures that was done they believe it is in its early stage but they are not 100% certain until they open her up. They also mention that the tumor is 2.5 cm big and that there is a slight chance that the tumor is on her pancreas being so close to it. The surgeon recommended the whipple procedure and the surgery will be 3 weeks from today.
My question is why did the oncologist tell us that it is in its early stage and the tumor has not spread but yet the surgeon said that they are not 100% sure whether or not it has spread until they open her up? Also with 3 weeks till the surgery my concern is that the tumor might spread.
Posts found: 12
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