I have been on here for a long time. Gordon was diagnosed two years ago. Is that great?? Well I would say yes and no. Did my children and I get more time? yes but at what cost to him? He has been in the hospital atleast once a month if not more since november 2012.
Some of you have been fortunate to have amazing results, some have had to say goodbye and some are right in the middle of the battle. In my husbands situation it looks like his liver has been damaged before we knew he had cancer so that changed alot of things.
What I am upset about is if the drs knew that than they should have discussed it with us instead of using him as a lab rat. Gordon was doing "okay" with just chemo before the IMRT treatment. No problems with the chemo, none of them ever stopped working, they just wanted to try something else . The IMRT treatment changed everything and no one wanted to explain.
So with all that said, his tumor markers went up, he started declining, the drain isn't working anymore. So they say hospice! NOthing to them but huge to us and the MDA dr talks to us and agrees when all they said was they would never give up. NO ONE prepared us this could happen, did i know it could of course i did but my husbands spirit was crushed.
Gordon has two months to 6 months. He isn't showing many signs of active dying yet. But even with the hospice nurses I asked how long and they say is "Im not a dr so I cant give prognosis" well we can't see any other drs while on hospice and the nurse comes to our house. Gordon does not see the hospice doctor at all.
Am I angry? yes Im angry? WE HAVE been fighting for 2 years and we are back exactly where we were 2 years ago. Gordon is jaundice and sick now he is dying, was then but the kicker is no one would tell us then!!! Awful cancer.
I know this forum is encouraging but we need to be honest and raw. People need to know the facts not just sugar coat it to help you cope. IS there hope always but when it gets bad or about to the drs NEED to tell us.