He's doing well, thank you! He's half way through his chemo and tolerating it well (he just gets very tired). He's maintaining his weight and his levels are good (white count goes down after chemo, of course). He's having his first follow-up PET scan today, so we'll know how things are going in a couple of days. He finally made it onto the liver transplant list, but he has a low score because he has a funky node. The radiation oncologist thinks it's a reaction to the radiation/chemo and the chemo oncologist thinks it's not a reaction and wants a biopsy. We'll find out who is right when he gets the results to the PET scan back. If his node is gone or smaller, his liver transplant points will increase to 26 (I believe that's correct). He will then start listing at other hospitals in addition UCLA where he is listed now. We're staying positive and doing what we have to do to fight this menace!
I don't know how you could do it being awake! My brother has always been sedated.
My brother is having his fifth ERCP next week. From his experiences, the Doctor who does the stent placement makes all the difference! His local doctor could only fit one stent in and also caused him to get pancreatitis after the first procedure. The doctor at UCLA was able to fit two stents in with no problems and he felt great for almost two months. Because of a mix-up with scheduling, he went back to his local doctor to have the stents replaced. The local doctor assured him that if he had any trouble, he would contact the Dr at UCLA. Well, he could only get one stent in and he didn't call for help. My brother got yellower and sicker until he could get an appointment with the Doctor at UCLA, who put two stents in with no problems. He also said that stents have a limited "stent life" when one is going through radiation and/or chemo. He advised my brother to have his stents replaced (at UCLA!) every six weeks. I believe that his stents are plastic because they are wider than the metal ones, but I will double-check that. Keeping you and your brother in my thoughts, Peggy! Sandy
Thank you all for your support! I'll post as soon as we get the final word from the liver transplant committee.
Thanks, Kris and Marion!
Resection is not an option
Hello, everyone. I've been reading through the discussion boards for a while now, but I need to post so I don't get kicked out of the group! Lot's of good info here and, most importantly, lots of support!! My brother was diagnosed at the beginning of summer with bile duct cancer. The cancer is at the top of the bile duct and a little ways into the branches in the liver. He is receiving his care at UCLA. He has gone through the liver transplant assessment, but hasn't heard the final word yet as to if he will be added to the transplant list. We're hoping to hear today. He already finished his radiation treatment (SBRT ) and will begin chemo this week. The diagnosis was quite a shock because he's always been so healthy. In fact now, he looks healthier than he has in a long time! We have a very close family, but unfortunately, we all live far away from one another. We are taking turns flying out to stay with my brother. I wish we could be with him througout the whole time that he has to go through this. Anyway, thanks in advance for your support and I'm so glad this forum exists (though I wish it didn't have to exist...)