Yipee, I mean we all knew you were in the clear. I did want to point out that I got a chest ct, demanded it this time after surgery. They pointed out nodules in my lungs as well. They called them pulmonary nodules. Same ones that apparently have been there for years like 4mm, never have changet size, and said most likely from residuals from infection. So at first the worried me of course and it clearly states these are not metastatic disease and sounds like thesecond little nodules are common eh?
Well hope u have or go celebrate soon Julie. Move on, go enjoy. Take a break from this crazy roller coaster ride. Keep on keeping on. So happy you got clear results! Just as I expected. wink

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(226 replies, posted in Introductions!)

Hey Matt my port was definitly still tender after about a week. I also decided to take a wave runner for a spin a few days after my port was installed and as I was on the water making a turn the end of the handle bar kinda hit my port which also probably caused some of the tenderness wink but I recall it being fairly tender a lot longer than I thought or had expected. Ice packs were my friend. wink

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(13 replies, posted in Introductions!)

Hiya. I had a resection in January of 14 then did adjuvant chemo for 6 months aFter with scans every 3 months. Over the past year they had noticed small spots on my liver and told me it was nothing to worry about and they would keep an eye on it. During this time all my blood work was normal. In December my ca 19 9 had jumped to 60, but did drop back to 10 in the beginning of Feb. I was told these numbers can fluctuate often especially after surgery and chemo/treatment. Well eventhough my numbers were wnl the little spots back in my livr was a recurrence and I had a second resection just last week. I too was told if mine came back it would most likely be in my liver as well. So I guess my biggest advice to you is be your best advocate, advocate for yourself and what your needs are, get answers. I hope you feel better soon and that you have some more info about what is going on, if anything at all. Hugs and blessings to you.
Porter

What wonderful news and congrats on the successful resection. Hugs and blessings to you.
porter

Oh duke, if u only knew. I am ways being told what an awful patient I am but I went out of my way to be a better one this time. I must say I am putting my energy elsewhere right now and could use all your love and support and gooD energy as well. My aunt came to be with me but suddenly had to leave bc my uncle apparently collapsed on the beach by their house and had a massive heart attack. They put him in a medical induced coma, and he is on a ventilator. These 2 are like a second set of parents to me. I love then with all I got. please keep them in your thoughts and send them whatever you feel is appropriate for you.  I'd much appreciate it. Thank you!!!!!
all is great with me, everything is good and I will be discharging tomorrow. Blessings and hugs.

Hi guys I'm kinda of in nodding off land. In hospital. Second day post op. I'm good. Recovering well. Two lesions were removed and were indeed cancer sad, but there happened to be be nothing wrong with my intestines so all they did was clean up in there and worked on those adhesions. So I'm falling asleep while I'm writing this but will check in again tom. Overall wonderful news, cancer was removed and we got clear margins. thanks for all the love and support. Hugs and blessings to all.
porter

Lain I recall u mentioning that before. Thank u. I will keep that in mind and bring it up with the anesthesiologist tom.

Hi guys. Thanks so much. I met with surgeon today. Feeling a bit, well let's be frank, etremely anxious. Surgeon informed me there is 2 little lesions and now been informed that with the intestines the likely cause is scar tissue but could be a possibility that it's cancer knudged in there that could be causing the friction. If that is the case during surgery they will find out and resect that part of the bowel. They seem optimistic that is not the case. They are guessing about 6 hours for surgery which sounds more appealing to me than the last 15 hour one wink I am so grateful for all of you and thank you for the support. Porter

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(226 replies, posted in Introductions!)

I never knew that!  Good to know!

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(226 replies, posted in Introductions!)

Can they remove an entire pancreas?  Can one live without one?  Sorry, I feel like these are dumb questions but these questions came to my mind say if one had pancreatic cancer or mets in their pancreas, can the whole thing come out? I was under the impression all of a pancreas could not be removed.

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(226 replies, posted in Introductions!)

All of a pancreas can be removed?  I have never heard that before. That is good to know!  Lainy, I liked your response. Well said! 
Porter

Hi Serena I had my surgery of January last year.  It was pretty invasive.   I have had pain/bloating etc, ever since.  Though I just found out most of this is due to my scar tissue and it's manipulating my intestines so that is what is causing my pain and even bloating they said.  Though this pain feels different that the constant intermittent pain I was feeling this entire past year.  From what I gather it appears for most of us pain is pretty common after such a big surgery and can remain common.  You know I thought when I was done recovering and such that I was just be bam, back to normal up and at em.  And though I am young, 35, I realize I will never have a new normal and will probably deal with some sort of discomfort for the rest of my life.  And there is nothing I can change about this and just learning to accept that I have a new normal. smile
Blessings,
porter

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(226 replies, posted in Introductions!)

Just for clarification, what is the difference between a Whipple or resection?

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(21 replies, posted in Introductions!)

And YIPEE on your scan being clear by the way. Can't ask for anything better! smile

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(21 replies, posted in Introductions!)

Hi Anne-Marie, we are in similar situations. I had a resection last January and about to go for a second resection next week.  This time my lesion is much smaller and is on the opposite side of my liver than the last time.   Did they confirm after your second resection that the lesion was indeed cancer? 
Well blessings and hugs to you, you've been through a lot and I am very happy that you were able to have your surgeries and now healing and living your life to the fullest.
Porter

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(226 replies, posted in Introductions!)

well I am somewhat disappointed that they are just going off assumption and not known facts at this point.  Are they going to wait and see what you PET says? What if there is no spread, would they still want you to do the chemo and then take out?  And if that's the case why can't they take out if it could come out now and then do adjuvant chemo?  I am sure these are all questions that you most likely have asked already.  I am hopeful for you and I am not assuming the worst!  I am the worst at staying positive for myself, but great at offering support and being optimistic and positive for others! You will be in my prayers.  Take care.
Porter

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(226 replies, posted in Introductions!)

Hi Matt I wish you luck on your next week appointments.  Is Mayo just assuming that this has spread and that is why they won't currently operate?  And this is just based on an assumption rather than tests/images?  I wish nothing but the best for you and please keep up posted on your latest updates.  Blessings and take care.
Porter

Kris I think the medical term is intussusception and i think i have a better understanding.  Scar tissue manipulating the intestines and they are sliding in and out of one another, or like I said engulfing.  Surgeon is back in the country and everything was confirmed today.  I have my pre op office visit Tuesday and surgery Wednesday.  I think I will be more comfortable about the surgery after my office visit and I am able to talk to her more about the procedure and what it will entail.  I do know that this time this lesion is on the complete opposite of the liver compared to last time.  My new tumor marker came in as well at my "usual" hospital and it is back to 10.  So the last one as they thought was most likely just a variability error.  Both of my parents have passed and so my Aunt is coming up for this, as she did last year. My plan next year is to get together with my family and have us all doing something fun rather than just coming together at times like these!  But thanks everyone. I will keep you posted.  Hospital 4-7 days and guessing as of now 4-6 weeks recovery time.  Blessings to all. <3
Porter

Thanks Lainy. Like I said surgeon is out of country and really hasn't seen any of my reports and results so as of now this is based on what she has heard. The onc did talk to another oncology surgeon and they both confirmed that this lesion is in a "good" spot and can be removed. They have been watching me like a hawk and they have definitely been on their A game so in less she feels otherwise, I hope this plan stays in place!

Hi everybody. This is my first public post about my latest news and I thought I'd share her first as I have not decided how I'm gonna say this on my Facebook. Had a follow up scan yesterday. Met with the oncologist today. She walks in and says..."well I don't this the scan is necessarily bad.." And immediately right there just start crying. So the same spot that has showed up on pretty much very post op scan is still there (was hoping it magically disappeared) and continues to slightly grow each time by like 1 mm or so. And each time they say its more conspicuous than the last. Its about 1.2 cm and in the corner of my left lobe. All of my cancer last time was in right. They still are not quite certain what it is but the time has come for that little sucker to come out. My surgeon is out of the country but was informed by her coordinator today of my latest report. Next thing I know I am being scheduled for a pre op visit on Tuesday and surgery on Wednesday of next week. So another resection is tenatively in place. I have also been having a lot of pain and was told the radiologist said and I don't recall the medical term, my intestines are engulfing one another and this is most likely due to scar tissue and from my last surgery. Has anyone ever heard of this? But this is the explanation for the pain so the plan is to clean that up as well while they are in there. So as of now this is the plan. I consider it good news for a crappy situation.

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(226 replies, posted in Introductions!)

Matt I'm sorry to hear about your news. I know  another woman who I met online who also had what was considered a successful surgery and she too just found a reccuence  and it was in her abdominal cavity as well. Seems like this is a common area for cc to met to or recurr?  I agree with Kris, if your gonna do chemo a port is definitely the way to go. As u might recall I was on gem cis prior to surgery and tolerated it well with minimal side effects. After surgery I was put on Gemox and along with the cold sensitivity like Kris mentioned , I didn't tolerate that regimen as we'll and had more side effects and it dropped my  platelets more frequent than the gem cis. Did you mention why they are saying it is not operable?  Please keep us posted , many blessings and prayers to you Matt.
Porter

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(7 replies, posted in General Discussion)

Oh Kris, sorry that you are going through this worry and that you are going through some physical ailments yourself.  I think of you guys often and always hoping and praying for the best for you two.  Please keep us posted. Many blessings and hugs to you and Mark.
Porter

Duke, loved reading this post today!!!

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(36 replies, posted in General Discussion)

Duke , funny thing...I live in BEAVER country. We didn't do too hot this year, so Im with you. Gotta go for those Ducks. wink

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(36 replies, posted in General Discussion)

Hi all.  I am struggling to stay calm, but trying.  No new word, though no one from my team seems to be too concerned.  They have reminded and assured me the SECOND they feel they need to move forward with anything and provide more in depth tests, they will do so.  It's crazy how one little number has completely gone mad smile  That being said, that number realistically could mean nothing.  I did have it drawn on the 4th of December in Portland (where my team is/treatment/etc) and on the 18th in Corvallis where I live, and I had them draw in while I was getting my port flushed.  I requested this draw on my own though my PCP. My oncologist has recommended to me to not do this anymore as far as request interim labs because I do get them drawn every 3 months and moments like this can just cause more anxiety on the patient. So they have said it could be a lab variability as they were two different labs.  I will be having blood drawn and my next scan the first week in Feb.  At times I can be very rational and irrational and I am aware of this.  In a rational state of mind, I do realize that they are doing really what they think is best and two months in between scans and blood being drawn in my opinion is really staying on top of it and I have to remember that.  My surgeons patient/scheduling coordinator has been an angel and we text on a regular basis.  She is very comforting and also likes to remind me that there is  team of experts that is watching my body's every move, more than I know and if there is ever any reason for concern, they will take the appropriate next steps.
I also saw my PCP on Monday having a lot of bloating and intermittent pain (this is nothing new, have had this all along and since surgery) he just assured me there was no fluid in my stomach and had a total normal physical abdomen exam by hand, and for me sometimes just going in and talking to him help alleviates some anxiety.  So i sit and wait until Feb and try and just RELAX my body and my mind.  Thanks everyone for the comments, love, and support.  Hugs and blessings to you all. I think of you daily! <3