Thanks all for the love and support. We are home now....tired but here. Mark came home on oxygen which has helped a lot with how he feels. He pretty wiped out as can be expected but happy to be here. Our kids did a great job of pitching in and making sure we came home to a clean house with minimal stuff to do. I will have to do tomorrow and pick up a few things.....grab bars for the shower and tub bench and some other odds and ends but it feels so good to be home.
I did get a nice long talk with the surgeon today with no one else around. Wonderful man and I honestly think he is as upset about the diagnosis as I am. I asked him point blank exactly what they found during the surgery. He says he found a 6 cm by 7 cm by 1.2 cm tumor with multiple smaller satellite nodules that look to be the same. They took a large section and under frozen slide in the OR there was no doubt that it was cancerous and adenocarcinoma which is the same classification of cancer as his cc. So as Dr Hubka said it stand to reason that it is mets from teh cc. He must have apologized 20 times about having to tell me the bad news. The pleuradesis did work around the left lung except in the area where the tumors are....they are unfortunately going to continue to leak some fluid because of what they are.
Spoke with the onc too. He is still wanting to see final pathology and then make a plan. He said that it will most likely be palliative at this point which I get. Because there are less than 2000 cases a year of pleural cancer whether mets or primary there was not a lot to go on for treatment. They would probably look at chemo and most likely the Gemcitabine again to slow the growth. We did talk about genetic testing which he says he would recommend IF they got a big enough tissue sample so we'll have to see what pathology says.
We got more years than we had. Mark and I were talking earlier this week and we came to the conclusion he was supposed to die when he was 14 with the Hodgkins but he beat it so these last forty years have been his bonus time and these last two years were his encore. I think we are both a peace now with what is happening (don't like it but accepting)
Love you all and thanks for the support.