First I'd like to say how sorry I am that you are all going through this and wish you all the best.
I am here to learn more about cholangiocarcinoma, it causes, treatments, and diagnosis, and to vent!
My mom, age 67, was diagnosed with bile duct & liver cancer in May. I cannot say I was surprised when she told me the doc told her she has cancer. Somehow, I knew what she was going to tell me. She has been sick for a very long time. She is a diabetic, lost a leg, has heart problems, terrible arthritis, needs another amputation, and lives in a nursing home. She joked one day and said she can't believe after all the other problems she has that would would get cancer on top of it all.
What did surprise me is when I contacted the neighbor next to my childhood home to say hi and she wrote back to say her husband also had bile duct & pancreatic cancer. He was diagnosed 3 months before my mom.
Personally, I do not think this is a coincidence. We all had well water, which turned out to be contaminated for a very long time. My dad is really upset about that because he blames himself for buying that house, but he keeps saying he would not have bought it if he knew about the water. I just keep reminding him he had no way of knowing, nobody did. I've been telling my doctors about the contaminated water for many years, but they don't know what to do with the info. (I have been unwell myself for several years now. Undiagnosed. I've had pain and generalized discomfort, kind of a swollen feeling, on my right side abdomen to back area. I'm seriously considering somehow getting evaluated for this.)
My mom started her first chemo a few weeks ago. Gemsar/cisplatin. I go to almost every doctor appointment with her, and will for the remaining chemo. Actually, there are at least 2 people, up to 7 people, that go with my mom every time. We joke around and call ourselves her entourage. I always go. My aunt and sister-in-law (such a sweetie) are there often, then my dad, brother, and sometimes the other brother. Sometimes people are crammed into every nook in those offices! The docs have been nice about it, some of the nurses aren't too happy, but my mom is happy so that is all I care about.
Things have been very stressful, as you all know. I also homeschool my child and have 3 other adults that I have to help take care of. I fill my gas tank 3-4 times a week. It will be nice to have a place to vent. I just told my daughter she can no longer take violin lessons or participate in orchestra because there just isn't enough time in a day and I am thoroughly exhausted. That made me really sad because she has been taking lessons since age 4; she's 11 now.
Guess that's it. Best wishes and prayers for you all.