1

(7 replies, posted in General Discussion)

I had lung metastasis at time of diagnosis, as well.

2

(13 replies, posted in General Discussion)

My thoughts and prayers are with you, Gail

3

(6 replies, posted in General Discussion)

Thanks much guys!  Yes, I have had 7 different opinions from many leading health care centers. I am now going on my 4th regimen of chemo as surgery and/or radiation are not options. All of these regimens were the same recommendations by AtlantiCare, Fox Chase, U of Penn, and Thomas Jefferson.
Thanks for your thoughts and prayers!

Milena
You are an incredible woman and I am very sorry for your loss. I wanted to thank you for your last post and I'm sure it must have been very difficult for you to write.  It really meant so much to me as I am a 45 yo father of 4. It is very difficult for a parent to determine what to say to their children, when to say it, and in how much detail. My kids ages range from 9 to 15 and I don't give each child the same amount of details.  I agonize over this on a daily basis and truly appreciate your input.
Thank you so much for sharing with us!
Bj

Very happy for you both!!  smile

6

(6 replies, posted in General Discussion)

Well, had a repeat PET/CT scan done last Tuesday and, unfortunately, not what I was hoping for. In summary, the tumors have all gotten larger, the metabolic activity has increased significantly, and more mets were found. 
I had bilateral biliary stents placed in September and now one has been infiltrated with tumor.  I am currently in Thomas Jefferson Hospital awaiting a stent replacement and another biopsy (to submit for genetic sequencing) in tha AM.  Really hoping this isn't a sign of things to come in 2014 smile

Thanks so much for sharing with us!

8

(7 replies, posted in Introductions!)

Hi Stacie. I am very sorry to hear what you and your mom are going through. You have a tremendous amount of support within this organization and we are glad you are with us. I am also on 5-FU plus leucovorin with a 3 rd agent added called Tarceva.  Is this what the Dr is suggesting to add to your mom's regimen?  If so, I would be happy to share my experience with it as I have been on it since September.
Bj

Phenomenal!!!
Very happy for you guys!

10

(12 replies, posted in Introductions!)

Thanks so much Kris!!

11

(12 replies, posted in Introductions!)

Hi Kris
Thanks so much for the info.  I am otherwise healthy and now that I haven't been on GEMOX for a few weeks am feeling much better ( also experienced severe SEs).  I am interested in the trial you are in and when I followed your link I got a journal article on adjuvant chemotherapy.  Any chance you can point me to the details of the trial such as enrollment, inclusion/exclusion criteria, etc.?  I'm not having much look with clinicaltrials.gov due to govt shutdown.
Thanks again!
Bj

12

(12 replies, posted in Introductions!)

Thanks so much for the rapid responses!  I will be sure to update all on my progress and future therapies.

I also had the itchies that drove me nuts!   Cholestyramine (Questran) helped a little. Works by binding to the bilirubin and preventing it from depositing in your skin.  Benadryl also works for some.
Bj

Hi Lisa
Sorry you joined this site as well:). Best of luck with your diagnosis and am praying it is localized and resectable for you!
BJ

15

(12 replies, posted in Introductions!)

Hi Lisa
Sorry you joined this site as well:). Best of luck with your diagnosis and am praying it is localized and resectable for you!

16

(12 replies, posted in Introductions!)

Hello fellow fighters!
I'm a 45 year old husband and father of 4 (ages 14-9; Fantastic4) and was diagnosed with Stage IV CC this past May. I have mets to liver, gallbladder, and both lungs which also means I'm not a candidate for surgery or radiation. My palliative chemo regimen started with GEMOX and I went through 8 cycles of every other week. I had some clinical progression and had bilateral stents placed in September at which time we also added Tarceva.  Due to neuropathies, BMS, and progression, my oncologist has switched regimen to 5-FU + leucovorin weekly and Tarceva daily.  I will be getting a repeat Pet scan the end of this week or next week.  I've been monitoring the clinical trials offered on clinicaltrials.gov and have really not found anything too exciting as of yet. I have consulted with Penn, Fox Chase, and Jefferson.  Although my prognosis is grim, I have the advantage of a phenomenal wife providing tremendous amounts of love and support, 4 terrific kids, relatively young age with no other comorbidities, and an extremely positive attitude.
Just wanted to introduce myself, give a brief history, and thank everyone for their participation and support.
Thank You!
BJ