I had to talk louder than he did a couple times, just to make a point. Even told him not to be condescending. He said he wasn't, just that he knew more than I did.
Overall, might have been better off with a doctor who knew nothing and recognized that and sought help, than one who thought he knew enough.
In the long run, not sure how much difference it would have made, but this underscores the NECESSITY of getting an informed second opinion quickly. Patients can't think of it as just a good idea. Folks, this is our lives we're talking about, not just some theoretical abstraction. Don't settle for second best - demand and expect excellence. I know I spent more time researching the purchase my last new car than I did picking an onc and treatment center. I'm probably not alone in this.
Getting a second opinion is in our power. But how do we get these doctors educated, especially when they think they already know enough? Maybe they did 5-10 years ago. It was obvious he had written me off as a dead man walking, but how do we get to others who might be more receptive? "Rare cancer" should not be a death sentence. It sounds like what I have interpreted that some outside the US have said that if you are not curable, they treat the symptoms, hope for the best, and concentrate their time and energy on those they might save.
If this wasn't so personal, it would almost be funny.
Thanks for listening, my friends.
Just found out today:
My niece's lung cancer is Adenocarcinoma, she had a scan today, the tumor is shrinking, good news. Not so good news is she has a tumor on her brain, they are waiting for confirmation of treatment from her medical insurance, hopefully the first of the week and have a gamma knife procedure soon after that with good results expected.
Scary thing is that her mom and I are the tall, skinny blondes of our generation, niece is the tall skinny blonde of my nieces and nephews, and my three kids are tall, skinny blondes.