I have only posted couple of times in the past but I often find myself referring to the discussion boards here every time I have a question about my dad who was diagnosed in May 2013. It was stage IV Cholangioncarcinoma that had metastasized in his gallbladder and liver.
Over last two years, he had undergone chemo, liver resection surgery, radiation therapy and more chemo. He was in and out of the hospital a lot but his (and my family's) goal was always for him to live as long as he can. Two weeks ago we had a dreadful conversation with his oncologist where he informed us that there is no therapy available for him anymore. He suggested comfort care. Couple of days after that his ammonia levels went up, he had internal bleeding and we took him to urgent care where doctors said that he might only have a few days. They said that he might not leave the hospital. He got lactulose, hydration and blood. That made him feel better and he was able to come back home.
We had a meeting with the hospice nurse this past weekend who gave us all the details on the program. She said that he will be able to go on hospice the same day he signs the paper. My mom is reluctant for him to go on hospice, mainly because she is denial. Other reason is that in the past blood transfusion had made my dad feel better and hospice won't allow that. Currently my dad feels tired/lethargic, he is aware but is sleeping a lot. His shoulder is hurting (on a scale of 1 to 10, he says the pain is 8. We are giving him dilaudid) - we suspect that it is due to a pulled (or weak) muscle. He constantly has a fever that we are treating with Tylenol. It seems that his weakness is a result of fevers.
Should I try to convince my mom to let dad go under Hospice care or should I wait and see if his situation improves?
I'll appreciate all opinions/suggestions. Thanks!