Topic: New here; mom-in-law recently diagnosed with CC

Hello folks, Greg in NC here. I recently stumbled upon your site while researching this new to me disease that my family and I are now going to have an intimate relationship with. My mother in law is about 3 weeks away from being 47, and has been in declining health for the last several months. Her #1 compliant has been abdominal pain. After several different diagnosis, the Dr's have come to the conclusion of CC. She was in the hospital all last week (was released a week ago yesterday) and there has been more of a decline in the last week than in the last several months. She has no appetite and is havinga good bit of pain. They do have her on pain meds. We have not received a stage nor a treatment plan. She has an appointment Monday with her local oncologist and another Wednesday at the cancer center at UNC Hospitals in Chapel Hill NC.

I just wanted to say hello and I am glad I found this site. I have already found a lot of good information here. Thanks and God bless.

Re: New here; mom-in-law recently diagnosed with CC

I hope you get the information you need at those oncologist visits. For some reason, I am remembering from somewhere that there is a cc specialist at Wake Forest (I think I am remembering correctly). Perhaps someone will pop in and give the name or correct me.

Wishing the best of luck to you and your mother in law.

Kris

Cancer is a word, not a sentence.

36 year old patient with buckets of hope

Re: New here; mom-in-law recently diagnosed with CC

Hello!  My name is Linda.  I live in Colorado.  My mom was just diagnosed with CC on September 5 of this year.  She was in the hospital for about a week. She had originally gone in for Gall Blader problems.  This is really hard on her.  She has been pretty healthy most of her life, then this showes up.  She will be 82 next month. She has days that she hurts and sleeps alot. Then there are days that she feels great.  I know I will be using this site alot. 

Linda

Re: New here; mom-in-law recently diagnosed with CC

Hey Greg, we're in Winston-Salem.  I'm not sure where you are in N.C.  I'm sorry you've had to come to this site and I'm so sorry about your mother in law.  There's great information here by a lot of wonderful people.  My husband Charlie is a few years older than she is. He's 52 and was diagnosed in May this year with Stage IV cc.  I'm glad to see you're going to UNC.  We did too after 14 weeks of Gemzar at Forsyth Med. Center and our oncologist there had no clue what to do and really didn't offer anything else.  We met with Dr. Hanna Sanoff there who is great, then Dr. Mauro did a chemoembolization and now Dr. Ben Calvo is the surgeon who will be taking half of Charlie's liver out on Thurs.  This was all after being turned down for surgery at Forsyth, Mayo, Univ. of Penn.  I wish your mother in law and all your family the very best.  Please keep us updated if you can.

Carol

Re: New here; mom-in-law recently diagnosed with CC

carol58 wrote:

Hey Greg, we're in Winston-Salem.  I'm not sure where you are in N.C.  I'm sorry you've had to come to this site and I'm so sorry about your mother in law.  There's great information here by a lot of wonderful people.  My husband Charlie is a few years older than she is. He's 52 and was diagnosed in May this year with Stage IV cc.  I'm glad to see you're going to UNC.  We did too after 14 weeks of Gemzar at Forsyth Med. Center and our oncologist there had no clue what to do and really didn't offer anything else.  We met with Dr. Hanna Sanoff there who is great, then Dr. Mauro did a chemoembolization and now Dr. Ben Calvo is the surgeon who will be taking half of Charlie's liver out on Thurs.  This was all after being turned down for surgery at Forsyth, Mayo, Univ. of Penn.  I wish your mother in law and all your family the very best.  Please keep us updated if you can.

Carol

See I said someone would come in and give you some information about NC doctors-I was just VERY wrong about where they were. So in future, you must disregard everything I write!!! smile

Cancer is a word, not a sentence.

36 year old patient with buckets of hope

Re: New here; mom-in-law recently diagnosed with CC

Thanks Carol, we are just west of Charlotte- before you get to Gastonia. I think we are seeing Dr Sandoff on Wednesday. Thanks again for the info.

Re: New here; mom-in-law recently diagnosed with CC

HI gmjack2......  I echo Kris sorry you had to come to this site, but you have a whole array of information here if you need it.  I just wanted to mention my sister lives in in Cary, NC and she completed her nursing degree about three years ago at UNC.  She has given me great reviews of UNC, as I was going to go there at one point for another opinion and stay with her for a bit.  She has mentioned many times how demanding and meticulous the doctors were.  Coming from a student that's a good sign for the patient in my book.  wish you all the best!
Jeff G.

Take it to the Limit,One More Time! (Eagles)

Re: New here; mom-in-law recently diagnosed with CC

Hi Folks- We had our consult w/ Dr Sanoff, and unfortunately there is nothing that can be done at this point. They did place a stent on Friday and that helped with her confusion and the jaundice, but Dr Vorheess and his team feel the best course of action at this point is to work with pallative care doctors to try to make her as comfortable as possible. From what I understand the cancer has spread to outside her liver and is quote "everywhere". My wife and I have been with her since Wednesday, coming home only Friday night and last night and are about to make the 2.5 hr drive again in a few minutes. They are hoping to move her back to our area tomorrow and hopefully into a new hospice house that just opened this summer. All the Dr's agree that she probably only has "weeks" left. Sorry to make this so quick, but I need to get out the door & on the road, Take care- Greg.

Re: New here; mom-in-law recently diagnosed with CC

Hi gmjack2......  So sorry about your mother in law's prognosis. The doctors didn't mention any low grade radiation with iodine? Also for bone mets there is radiation and other therapies to slow or stop growth in the bones.  Well, you said everywhere so I guess that means other major organs.  My heart goes out to you all.
God Bless,
Jeff G.

Take it to the Limit,One More Time! (Eagles)

Re: New here; mom-in-law recently diagnosed with CC

Dear Greg, my heart goes out to you.  This is so hard and unfair.  I pray for strength, comfort and peace for your Mom, you and your family.  I hope your Mom is closer home now.  That drive is exhausting.  Take care of yourself.

Carol

Re: New here; mom-in-law recently diagnosed with CC

Hi folks, thought I would give a quick update. We are now under Hospice care and moms-in-law has moved in with us. My wife is taking care of her full time. We don't know if it is just her expressing herself, or if it truly is the pain, but she is moaning and groaning out loud quite a bit. She does this when she is awake. For pain control, they have her on two duragesic patches, oral morphine, and lorazapam and ativan for sleep. We have seen a great decline in the last few days, she has stopped eating for the most part (a few sips of Ensure was all we could get in her today) and she has been asking for ice water occasionally. We have stopped trying to get her to the bathroom and are using a bedside commode as it was taking too much of her energy. Her legs from the knees down are extremely swollen and are weeping. If she continues the decline have been on for the last few days, I don't expect her to be with us for another week at the most. We are trying to have as much time as we can with her while we can. My wife is of course taking it very hard (she is only 26, I'm 28) as is her 21 yr old sister and 19 yr old brother.

I hope everyone is having a good Thanksgiving, this one has been especially hard on us.

Take care,
Greg

Re: New here; mom-in-law recently diagnosed with CC

Dear Greg,
I am so sorry that you, your wife and family -- and especially your mom-in-law - are going through this. And I'm sorry you can't even enjoy the holidays with her, because she is in pain. It does sound like you've faced the inevitable - her symptoms right now sound exactly like my mother 2 days before she died. You are all too young to have to go through this - but then, none of us should have to go through this. I hope she has a peaceful passing, and I wish peace and comfort to you and your family.
-Joyce

Re: New here; mom-in-law recently diagnosed with CC

As we all knew it was coming, moms-in-law passed away late Saturday evening. Her blood pressure had been down and pulse became very rapid for most of the day. Her breathing had been labored for over 12 hours. We were all by her bedside, just sitting with her and she made one sudden gasp/gurgle and took about 5 more breaths and was gone. It is so hard to lose someone so young (she was about an hour and 15 minutes away from her 47th birthday) but knowing she is at peace now, not dealing with the terrible pain she had  been in for the last few weeks, gives us comfort. This cancer is the worst thing we have ever dealt with, she was preliminary diagnosed with it exactly one month ago today.

Re: New here; mom-in-law recently diagnosed with CC

I am so very sorry. My heart goes out to you and your family.
Joyce

Re: New here; mom-in-law recently diagnosed with CC

Dear Greg, so sad to hear the news of your mother in law.  I'm glad you find comfort in that she's no longer in pain.  I'm so sorry you and your family are going through this.  Wish I could say something to help.  Prayers and good thoughts coming your way.

Carol

Re: New here; mom-in-law recently diagnosed with CC

Hi Gregg,  My sincere condolences to you and the rest of the family.  May Mom -In - Law rest in peace ! 
God Bless You All,
Jeff G.

Take it to the Limit,One More Time! (Eagles)