Re: Recently diagnosed, our journey so far.
This must be incredibly hard for you and your family. I strongly suspect that your mum knows she is not going to get better.
What support are you all getting? Have Macmillan nurses or Marie Curie been involved or mentioned? How involved is your Mum's GP? Are district nurses coming in? You should not be having to manage the emotion and end of life decisions on your own without professional help. It is mentioned a lot on the forum that we don't have expiry dates stamped on the bottom of our feet and whilst it's not an exact science, I do believe that professionals (such as Macmillan or Marie Curie) do have an indication as to how long an individual might have.
Even if your mum does not want any involvement from Macmillan or hospice, they can still support and help you and the rest of the family. Your Mums GP or consultant should be able to get this done immediately for you
I forced my sisters GP and consultant to take my sister back to hospital and tell her prognosis. It was just not something I felt I could do on my own. Nobody had officially told me a timescale but her decline was rapid and she needed to know that chemotherapy was no longer an option. We all thought she didn't 'know' but my sister eyeballed her consultant and asked him how long she had. He told her 2 months at best and she died 2 weeks later. Those 2 weeks allowed her to do the things she wanted and needed to do and despite us thinking she didn't know the true picture, in reality she did. I'm not trying to be blunt- what I'm trying to say is if you go with your gut and if you feel she is declining quickly then do what you can now for her. Put your energies into what you can control now for her.
You have been doing everything for her that you possibly can - please don't doubt your actions and decisions. Use your energies to continue to do the best for her and spend time with her.
In the stars now . . . .