Topic: First CT Scan on Monday
Well, we've made it through three cycles of Gem/Cis as our first treatment plan. My wife is handling it OK so far. No major effects of chemo. She has the normal side effects of fatigue and nausea. But we've learned how to cope with those so far. Interestingly, her nausea attacks tend to eliminate lots of "air" trapped in her but not really much substance.
Monday, July 1 will be the first CT scan since treatment started. We are ready and yet still very anxious about this test. We feel progress has been made. In the early days, we could not get her to 1000 calories/day - she had no room. Her liver was quite enlarged and pressing on her stomach, which made her abdomen very extended. Over the past two weeks, we've seen reduction in her abdomen and an increase in appetite and energy. She is now at 1700 calories/day.
Ironically, she had a CA-19-9 marker test last week return a value of 1100 v. 156 on 4/23/13. That scares me a little. But the other indicators are aligned - I want to believe we are making progress. I am going in to this with a positive outlook, but the realist in me cannot get too optimistic.
We are also going to switch roles for our Oncologists. We no longer want my wife's treatment plan to be defined by the local Oncologists. We will switch to a doctor at Sloan who provided a "second opinion" originally. He has been great so far.
As an aside: Kris00j, I hope we have a better experience at Sloan. We really like our Oncologist, both from a knowledge and empathy standpoint. But I must tell you, I still personally believe Dr. Denlinger is the model for what future Oncologists should strive to be - I hope you have great success with her.
We will also ask about the new trial which has been discussed on this forum. (Hepatic Arterial Infusion (HAI) With Floxuridine (FUDR) and Dexamethasone (Dex) Combined With Systemic Gemcitabine and Oxaliplatin in Patients With Unresectable Intrahepatic Cholangiocarcinoma (ICC) ).
Finally, after the three months my wife has been through, we are hoping to get away for a few days after her CT scan. We want to go to the beach (Ocean City, MD) for a few days with our children to enjoy life while we wait for the scan results. She has not been able to sleep in a normal bed but we feel we can use enough pillows, etc. to get her through a few nights. We will work to get her ready. A change of scenery will be very beneficial.
Thank you for all you have done for me (us). I come to this site every day. And I find something every day in these posts that convinces me I must keep up my desire and drive to do everything in my power for my lovely bride (of 30 years in November). This is our new life.