Topic: Mid chemo results

After 2 rounds of Gem/Cis my oncologist said I need a scan before we start round 3 because my #s are not good.  High CA-19 & platelet count not good.  So I am a little discouraged.  My SIRT radiation did not work & now looks like the chemo isn't working either.  I saw another oncologist at UCI & they are looking at my biopsy tissue to see if I have the gene to qualify for a trial.  I don't have the info in front of me to give the name of it.  I have been feeling great like nothing is wrong with me.  Hard to digest it all.

2 (edited by Lainy Thu, 18 Jul 2013 20:31:48)

Re: Mid chemo results

Pattimelt, please don't despair as this could all lead to something better. Kris is doing great on her Trial and perhaps the CC monster needs a little shake up. I am hoping you get in to a trial. It is the weirdest disease. Very strange I guess the better you feel, things look like they are not working. Here's hoping for the very best for you and please let us know right away. Sending you all good vibes and juju.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Mid chemo results

Pattimelt,
I'm sorry to hear about your latest news on the progress of your treatments.  I can imagine how disappointed you are to hear it.  But I do remember a lot of members who have been fighting this disease said that this is like a rollercoaster ride.  There are ups and downs and surprises in store.  I hope this is one of those downs till your next ups!  Best of luck to you on qualifying for a clinical trial.  I'm also sending you loads of hope and positive thoughts your way.

Hugs,

Jeeyoung

Re: Mid chemo results

Thanks for the encouragement.  I will keep on keeping on!  My hope is in the Great Physician!  This is definitely a roller coaster ride!  I am doing a lot of screaming!  Also enjoying to good days as much as I can!!

Re: Mid chemo results

Pattimelt, I'm sorry you got disappointing news. I will be praying for you.
Hugs,
Lisa

This Information Is Not Intended Nor Implied To Be A Substitute For Professional Medical Advice. You Should Always Seek The Advice Of Your Physician Or Other Qualified Health Care Provider

Re: Mid chemo results

Pat timely,
I spent two years getting hopeful, then discouraging news. It is so tough. I didn't understand why I felt good but was being told how sick I was.
Then I heard about this trial. I believe in my heart and soul that this is where God wants me to be. I'm still feeling healthy, and everything is stable!! I hope and pray that you get some good news soon.

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: Mid chemo results

Kris,
What trial are you doing?

Re: Mid chemo results

Pattimelt,

I am sorry this is not the news you were hoping to hear.  I hope you are able to qualify for the clinical trial.  I like your attitude...and I think keeping on, keeping on is definitely the way to go!

-Randi-

Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.

Re: Mid chemo results

I'm on a trial at Fox Chase Cancer Center, U of Pa and Georgetown. It's an inhibitor. There are so many trials out there... I really believe immunotherapy is the wave of the future. And all these trials seem to want biopsies to compare genetics.
Feeling healthy is the most important thing.
Keep in touch and let us know how things are going.

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.