Topic: Cholangiocarcinoma Process Flow
I have an idea which will require a ton of work. And if the experts on this forum feel there is merit, I will gladly agree to help build the model.
In my 4 months of being involved (daily), I see each new person coming in with the same questions, fear, concern, etc. that we did. And I see the responses to each person being somewhat the same. What I have learned is those initial responses may be a good starting point, but they may not hit the target and then it is up to the person to ask more detailed questions.
And that is where I see a glitch. Like me, most people don't know what to ask next or how to traverse ALL the information to be able to boil it down to "What do I need to know and what do I need to do next". This is the scariest time for newbies and - accepted - the hardest time to provide a definitive answer to their question. But maybe we can get closer ?
I am an engineer by background and have been involved in process flow, process improvement my entire career. I coordinated global process improvement programs within my company. I am only using that as a basis for my next statement.....
Do you think we can build a process flowchart where a person can link in at any point - no matter what their personal situation is - and find the appropriate course(S) of action to go forward??
I see the work done by Percy and Bruce to collect information for each patient. I see the research done by ALL moderators, many senior members, and others, and I ask myself - how do we make sense of this all for the benefit of our entire community.
How would this get started? It may require a few personal meetings to get the core input. Those meetings could be in person, Skype or some other video forum, or other standard technologies like "Go To Meeting". At some point, there would be a 2+ day "Whiteboard" session where we would build a basic model, send it out for review, and then define it. Afterwards, we would be in a continual change process for quite some time as we 1) modify/expand the existing model while 2) continually adding to the process.
As one who has been involved in this process for 30 years, I want to caution you - this is hard work. But it is incredibly worthwhile if we believe we can help many people find a clearer path than they have today.
I await your response and understand that this may be outside the scope of this forum.
All the best,