Topic: New member - choledochal cysts
I hope I am not intruding here, but at this time I am sort of without a place.
The short version of why I am here:
I am 52 years old and May 29 it was inadvertently discovered that I have Choledochal Cysts (Type IVa). I had gone to the doctor for a mild and constant lower left pelvis pain and when a GYN ultrasound didn’t show anything abnormal on the left side, my GP ordered an abdominal CT scan and the discovery of the cysts was made. They still do not know what is causing the pain on the lower left but at this point, I’m looking at it as a blessing. They did find that I do have a 4 cm right adnexal cyst that is being “watched” - I have a 60-year old sister who has breast cancer and had a mastectomy on May 20th and the evening I found out about my cysts (May 29th), one of my brothers died from brain cancer- Glioblastoma Multiforme. I do not care for the word “watch”.
August 19th I will be having resection of the left lobe of my liver, gallbladder which is also “abnormal” and Roux-en-y Hepaticojejunostomy. Since the medical consensus is complete resection of the cysts I have not had a biopsy yet. We will find out if the cysts have turned cancerous with the surgery. I will be having my surgery at Kaiser Hospital in San Francisco – I don’t live in SF but it is the closest hospital with qualified surgeons. I joke with my husband about him being such a great guy I’m going to take him to SF for vacation.
As you all know better than me, it is a very scary time for me. I found this site in May shortly after I was told about the cysts and how they can progress and have been a lurker and last month registered as a user, but think now it is the time for me to take the step to say hello and ask for guidance.
I was wondering if anyone here had choledochal cysts. Since they are usually discovered in childhood, I have not been able to find much information on adult diagnosis.
Any insight to what to expect from the procedures I’m having done would be greatly appreciated. This is definitely unchartered territory for me. I have been told that the surgery will last 8 – 10 hours and that I will be in the hospital for 7 – 10 days but have no clue what to expect during my recovery.
Again, since I have not been diagnosed with bile duct cancer, I hope this is not an intrusion.
Prayers for you all -