Topic: MD Anderson visit
Had an awesome visit at MDA! I had been trying for a while to switch to Dr. Javle and kept having my request denied. Thursday I had a very emotional phone conference with the Director of the department which I thought still led to no where. So today I'm in the room waiting and who walks in but Dr. Javle!!! I was shocked and happy. The decision to switch me was just made yesterday. Anyway he said my scan looked good. I've had shrinkage and the CA 19-9 had gone down. He gave me so much more hope than my other Dr. He said he wants to do molecular testing to see if I have the good cells or the bad cells. If I have the good cells, then there may be a possibility of a transplant later down the road. He told me to stay positive, make long term plans, and exercise. Just to remind everyone, I'm stage 4 intra hepatic with mets outside the liver. I am currently doing Gemzar and Cisplatin.