Topic: Somewhat new to the site

Hi all, Rod here.  First off, thoughts and prayers to all who have been affected or impacted by CC.  I am a 46 year old, 19 month survivor of CC.  I had CC of the intrahepatic bile duct.  Was very fortunate to have surgery which took about 65% of my liver, my gallbladder, a couple of affected lymph nodes and the addition of a stent.  I did 3 months of Gemzar chemo and other than an absess and a couple infections after the surgery I have done very well.  I liked to be active before my diagnosis and I have been able to return to all my normal activities.  I was even able to race a sprint car again a couple weeks ago for the first time since my diagnosis.

I have a fantastic surgeon, Dr. Chaudhry and a very positive and supportive ONC in Dr. Heddinger.  Both through Iowa Methodist in Des Moines, IA.     

Last week after a quarterly CT scan I found out I have another small mass in the liver.  About 1cm in the left lobe not near any bile ducts and the plan is to use radiofrequency (RF) thermal ablation to remove this tumor on the 18th of this month.

I haven't seen much on here about the radiofrequency (RF) thermal ablation process and was wondering if others have experience with this procedure?

Re: Somewhat new to the site

Hello rod, glad to have you join our extraordinary family but sorry you had to find us. First of all congratulations on a successful surgery, we love the word surgery as it is the best hope for a cure. I am so sorry I can't help you on the RF as my husband had a Whipple no chemo but radiation when the CC returned 2 years later, followed by Cyber Knife. We do have a search button at the top and if you type in any words of what you are looking for lots of posts will appear and I am sure there must be something in there on RF. On the light side, I had to chuckle that you are a Sprinter and live in a town called van METER as every yard counts! Best of luck on the RF and I know someone will be along to talk about RF. Hang in and Be Strong!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Somewhat new to the site

Hi,
Intrahepatic liver  tumor ,,sizes<3cm or number not more than 3-4 lesions, chemoemo first followed by either RFA or microwave ablation ,based on medical research articles that I read, will have the best chance to be completely ablated,that the result will be on par or the  same  with liver resection but without the  long recovery period of surgery.
God bless.

Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If  provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.

Re: Somewhat new to the site

Thank you both for the replies.  Great to have the positive thoughts and words of wisdom.

Re: Somewhat new to the site

Hi Rod,

Welcome to the site. Sorry that you had to find us all here but glad that you've joined us all as you are so in the right place for support and help and I know that you'll get a load of both from everyone here. Thanks for sharing your story with us all. Yes you have indeed done very well and that is great that you were able to have the surgery and even better to hear that you are doing so well, long may that continue!

Good luck with the RFA. I can't share any personal experience with that as my dad had PDT and there is not a lot here on the site about RFA. I did a search for you and came up with this from Percy -

http://www.cholangiocarcinoma.org/punbb … =866712306

I hope that it works well for you and please keep in touch with us and let us know how that goes. Please know as well that we are here for you and we care.

My best wishes to you,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Somewhat new to the site

Had microwave ablation on 9/18.  Went well from what I can tell.  Radiologist who performed the procedure felt good about how things went.  Recovery for this process has been pretty easy, just some crampinng around the burn area along with some tenderness and some fatigue from the pain meds.  Currently awaiting results of the biopsy and consultation with ONC to determine next steps.

Re: Somewhat new to the site

Hello, Rod and I am so glad to hear everything went so well. Do you have an appointment yet for the consultation? We get anxious too, for you! Please keep us advised of your progress.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Somewhat new to the site

Thanks Lainy.  Received a call from ONC late yesterday afternoon.  He said the biopsy confirmed the mass I had burnt was CC as we had expected.  No plans for further treatments as far as chemo or radiation.  We will continue 3 month scans to stay on top of any future returns and handle them with microwave ablation if it returns as a single mass like this last one and if it returns in multiple spots then we would look at other options at that time.  Or if it never returns we won't have to do anything(never hurts to hope). 

Thanks again for the replies and positive thoughts from everyone.

Re: Somewhat new to the site

Hi, Rod,
Sending positive thoughts and prayers for you! I'm hoping that you have many many cc-free years ahead.

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.