Topic: PET scan results

I just got home from Houston for my quarterly PET scan at MDA and my results weren't great. The Xeloda/Gemzar is not working and there has been some progression. I will be starting FOLFIRI and be adding Tarceva a little later. I am a little freaked out about this chemo combination and would like to hear from others about your experience with these drugs.

Suzy

Re: PET scan results

Gee wiz, Susie, I am not versed in chemo but I am sure its frightening to change cocktails. But keep in mind that a new chemo may be just the one that zaps! We are all with you 110%. Do you know when you will start the new one? I know we have members who have been on those you mentioned and I sure you will hear from them. So, get out the pink boxing gloves and I hope this is just a tiny bump in the road. We are all here for you!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: PET scan results

Thanks Lainy!  I have an appointment Thursday with my local oncologist to discuss the new plan. I will probably start in a couple of weeks.

Suzy

Re: PET scan results

Susie, best of luck and you already know the rest....keep us updated!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: PET scan results

Susie.....here are two conversations focusd on FOLFORI
http://www.cholangiocarcinoma.org/punbb … 1927721189

By clicking on "go to post" bottom, right side, you will be able to read the entire thread.
Good luck, dear Susie, and please don't hesitate from reposting your question so that it can't be overlooked. 

Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: PET scan results

Hi Susie,

Sorry to hear this latest news from you. But please do not give up hope and stay strong. That's great that you already have an app lined up with your local onc to discuss the new plan and I so hope that it works better for you than the last one. And of course you know that we are here for you and please let us know how everything goes for you. My fingers are crossed too!

Hugs,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: PET scan results

That link didn't seem to work Marion. Try this Susie -

http://www.cholangiocarcinoma.org/punbb … 095#p76095

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.