Topic: What to expect?
I haven't been on here in quite a while. The last time I wrote, my mom was planning on getting a second opinion from Johns Hopkins, which she didn't do. Instead, she did visit the University of Chicago and was a candidate for a clinical trial. After a lot of debate, my mom has decided to forego any treatment and try to enjoy her time, while maintaining her quality of life. So far, she is doing fine, with the exception of bloating after eating. She can only eat small meals at a time. Aside from that, she appears to be doing okay and says she feels great.
My question is, what should I expect as this disease progresses? Will there be a sudden decline? A gradual decline in her health? I have no idea what to expect. I see her now and just can't believe that she is so sick. She looks great, acts great, and claims to feel great. She goes out dancing and is still very active and energetic. I just want some insight as to what I can expect. Any information would be appreciated.