Topic: What to expect?

I haven't been on here in quite a while.  The last time I wrote, my mom was planning on getting a second opinion from Johns Hopkins, which she didn't do.  Instead, she did visit the University of Chicago and was a candidate for a clinical trial.  After a lot of debate, my mom has decided to forego any treatment and try to enjoy her time, while maintaining her quality of life.  So far, she is doing fine, with the exception of bloating after eating.  She can only eat small meals at a time.  Aside from that, she appears to be doing okay and says she feels great.

My question is, what should I expect as this disease progresses?  Will there be a sudden decline?  A gradual decline in her health?  I have no idea what to expect.  I see her now and just can't believe that she is so sick.  She looks great, acts great, and claims to feel great.  She goes out dancing and is still very active and energetic.  I just want some insight as to what I can expect.  Any information would be appreciated.

Re: What to expect?

Hello Moniel and I believe that your Mom made the right decision for her. It is up to everyone to do what they think is right. Can the ONC give her anything for bloat? Instead of full meals she might try grazing during the day and a Nutrition drink daily as she really needs her energy to fight what is going on. Stay away from fried food and perhaps dairy for the bloating. Everyone progresses differently, we just never know. I do have a list of 10 signs what to expect at the end but I don't think you are anywhere near that yet. When that time comes ask me and I will e mail it to you. Probably and I am not an ONC but she will start slowing down and eating less. At that time it would be a good idea to talk to her ONC about Home Hospice and that can go on for months. The ONC will order it and you will be happy to have their help. I am sure others will come along with some ideas for you. Please keep us posted. Dancing???  That is great.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: What to expect?

Thank you, Lainy!  You're absolutely right about the dairy and high fat foods!  They really upset her stomach.  I believe she has contacted hospice to put things in place, but I will double check.  Thank you again for the information. 

Michelle

Ps...yes, dancing!  My mom has more energy at 62 (with cancer) than I do at 35!  She's always been so full of life...I so wish that this wasn't happening to her.  But, one day at a time.

Re: What to expect?

Yes, Michelle. One day at a time and enjoy and making new memories. If Mom has already contacted Hospice I believe that shows that she has accepted her destiny.Wow, what a woman she must be and what an attitude. Yes use this time amd love every minute of it! Be strong.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.