1 (edited by hercules Sat, 05 Oct 2013 21:05:31)

Topic: Eight years

Sometime in late september ( I didnt write the exact date) I past my eighth year past diagnosis of intrahepatic cholangiocarcinoma, and I am not a health guru or anything like that, I live a ordinary life and the only thing that seems to have really saved me was early discovery and a slow growing tumor. I am blessed with a supportive family and I had a good job with excellent health insurance and many good doctors and a ultrasound technician that called the soft tissue tumor in my bile duct "possible cholangioccarcinoma " in her report, sending my doctors in the right direction right away.I had my liver and bile ducts resected in january of 06' so my message is things can go well, you are your own advocate, listen close when any doctor or nurse speaks to you. More importantly, listen to your body, it will let you know when thing aren't right. My life has been rather busy lately but I am doing well and my mantra lately has been to help others that life has overwhelmed. I hope to have more time for online activity this month and it is good to be back, Pat

Re: Eight years

Hercules -
I love to hear that. My husband is only 5 months into this roller coaster ride. I am so glad to know that there are those that are living with this disease..

KrisV

Any advice given is based on my experiences and should not be substituted for any medical recommendations. Please speak with your provider before making any changes.

Re: Eight years

Thank you, Pat!! Your words mean so much.

Willow

Re: Eight years

Pat that is the bestest news ever!! Wow, you are a poster boy at 8 years. This post of yours will give so many the HOPE they need to get through this Journey. You are so right about listening to one's body and I believe in that for the Care Giver also. Sometimes I feel Like I graduated in GUT 101. I am just over the moon for you. Please stop in when you can I miss your positive energy! And a hearty CONGRATULATIONS!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Eight years

Great news Pat and my congratulations to you! Your story gives so much hope to everyone and I so agree with what you say re early diagnosis and listening to your body. So very glad indeed to hear that you are doing well and helping others and yes, it is good to have you back here!

Congratulations once again and thanks for sharing with us!

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Eight years

I loved reading your post Pat.  Only this morning it was going round and round my head about this disease having such awful survival odds and trying to reason out from the forum, just how many people I could recall surviving. 

Keep doing well and shout about it here.  We love hearing about it:-)

Clare

In the stars now . . . .

Re: Eight years

Wow, this is a wonderful post and inspires so much hope!

Re: Eight years

Great news Pat!

Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.