Quick update on me.
5 more days of IMRT to go. Yesterday was my last chemo day with cisplatin. I had to get a 2d dose of iron because I'm anemic (got a bag of iron the week before, too) and this is my last week of wearing the 5FU pump all week. It will come off Friday, as will the picc line they put in my other arm for the IV antibiotics I've been taking since I spent most of February in the hospital with infections and dehydration. I think they will keep me on an oral one while they are deciding if they can remove my bile drain tubes, because I've had lots of problems with them.
My oncologist said that since I only have 2 days of radiation next week, I don't need the chemo then. They are sorta like snow days, tacked on at the end. I would have finished radiation this Friday, but I ran a fever one day and was told not to come and the other day, the machine was down, so I'm making them up next week for the full 30 days.
I will go Monday and get a 3d iron infusion. They said anemia happens with cisplatin particularly. No wonder I feel draggy and tired.
Still not great appetite. Wondering if that ever returns. I hover between 117-119. I think everyone would like to see a number closer to 130.
And then .... I wait.
I'll see my oncologist the next week (I'm assuming he'll do labs then), and we'll schedule my scans. I know they want at least 4 weeks to let the radiation finish and to let the inflammation die down to get as good a picture as they can. My pre-radiation scans were really hard to read.
And then ... I don't know what comes next. The scans will be key.
I am trying to get some normal life back. I rode my bike about 6 miles Saturday and it was cold and windy. I'm signing up for a 23 mile charity ride this weekend. Last year I did the 30 and 50 mile routes of these respective rides without even thinking about it, to give you an idea of how my "then" versus "now" is.
Still, my oncologist was pretty amazed I did the 6 mile ride at this point in treatment. He said I looked fantastic (and I don't mean looks - heck, he's probably never seen me with a lick of makeup on).
So, I have no idea what the future holds, but I'm trying to hold on to some normal life (whatever that is anymore). I still feel that 2d shoe hanging over my head, ready to drop at any minute.
What is the balance when you are done with active treatment, but still aren't a candidate for resection (and trust me, if they say no here, I will be getting 2d, 3d, 4th opinions).