Topic: Phase 1 completed
I want to give you an update regarding Lynn.
Lynn recently completed 8 cycles of Gem/Cis. We had some challenges along the way. After cycle 6 we were ready to quit. But then the onc added Emend and steroids for the last two cycles. What a huge difference it made in Lynn's ability to cope.
We had a CT scan last Friday and met with the onc today. She was very pleased with Lynn's progress. She did a wonderful job of showing us - in a side by side comparison - Lynn's CT in May (at her worst) and the one from Friday. What an incredible improvement. Our onc suggested 70% improvement from that scan. We are so very grateful.
The reality of the latest scan was also clear. The written report said something like the tumors in her liver were "too numerous to count". Including the mother ship - a giant blob sitting right in the middle.
She suggested the next phase of treatment as "maintenance" chemo. Just gemcitabene but no Cisplatin. She even consulted with the doc at Sloan whom we've used for second opinion. They both felt some maintenance chemo might help until further assessment suggests another treatment. We talked about liver directed therapy but her concerns were 1) we aren't dealing with one big tumor but tumors throughout and 2) not lose sight of the fact that the lymph nodes look good now but liver directed therapy will not keep them at bay. Valid points in our view.
So next week we start a new regimen of Gem 3 weeks - 1 week off for an undisclosed period of time.
I have to say I was close to tears in the office as Lynn saw the very different views of the 2 CT scans. It seemed every step the onc moved the image, Lynn's smile got wider. She left with a sense of purpose that I had not seen in previous doctor office visits. How great is that.
Lots more to say but too much for a single blog. So I'll end with that for now.....
To ALL moderators and other support persons who lovingly give your time and kind words to help others.....thank you. What you do each and every day to help the spirit of so many patients and caregivers is awesome. I wish I could find a better way to say thanks.