What started with a very small group of people (I believe we were less than 15 in all) has grown to be the most sought after discussion forum for those touched by this cancer. The success of this board is directly related to the kindness, caring and compassion of those contributing to this site. This community has created an invaluable resource, shares experiences and offers support for those seeking answers to this disease.
Our moderators are not monetarily rewarded rather their commitment to all is based on true selflessness.
Pam lost her young daughter to this disease. We are devastated and still are reeling from the shock of it all. Although, she is the one in need of support, it is our Pam that has helped us, the members of this site to heal and move forward. While her heart is broken in millions of pieces, she continues to offer support and encouragement to others.
While fighting for his own survival, Percy continues to search for answers by attending conferences and symposiums, serving as FDA patient advocate, donating numerous hours to research and treatment options; providing support to the foundation and members of this site. He has undergone three resections and numerous, other treatments causing fatigue and tiredness and yet he continues to be there for us all.
Kris has undergone numerous treatments and has dealt with serious side effects. When speaking of a Cholangiocarcinoma roller coaster ride, our Kris has experienced it all. Personally, Kris has survived the ups and downs of this cancer and yet our Kris continues to be there for others.
Randi has conquered three cancers including Cholangiocarcinoma. Rather than turning away from cancer, she has chosen to volunteer her precious time to help others on this site. Additionally, Randi finds time to participate in APOS phone conferences in order to obtain knowledge beneficial to us all.
Lainy has lost Teddy to this cancer, is in treatment for debilitating UC and yet she continues to check in with this discussion board all through her waking hours. She is always here to lend an ear and to give advice and continuous to humor us through it all.
Gavin lost his Dad to this cancer several years ago. He has virtually no help in tending to his ailing mother and yet he devotes much of his life to this foundation. He supplies us with most of the new developments pertaining to this disease and has been especially helpful to those patients and caregivers living in the UK. His contributions to the Cholangiocarcinoma Facebook Page encompass the majority of entries.
We are mainly a volunteer organization. Thousands of hours have been donated to creation of this site and thousands more hours are needed in order to sustain the growth of this foundation. The work behind the scene is endless – we work with limited resources; we lack manpower. Donations to the foundation are carefully selected for specific research projects leaving very little for occurring expenses. Most of us have not only donated our time, but in order to grow we also have contributed financially to this foundation. At times we are overwhelmed, continuously understaffed, but we don’t waver from our goal by providing the best service possible to the Cholangiocarcinoma Patient Community at large.
Do we want to improve on this site – absolutely, we do. Though we love to please everyone, we simply are not always able to do so. Can we answer all questions – not likely. But, together we have built the platform for success.
We deserve a hug. So, here we go.
THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER