Amir....I agree with Lainy. Language skills have yet become an issue for you, us and everyone else joining this forum. This disease has no borders and neither does this site.
While attending numerous, numerous medical conferences including, those held in foreign countries, the issue of expanding this site has come up frequently. The Cholangiocarcinoma Foundation is very much in favor of doing so however; we are hindered by the logistics of it all.
Questions we are pondering: who will lead the discussion forum? Moderators make a huge commitment to the patient community at large and often times, as we see in our case, patients, while navigating their own illness, offer their skills, expertise and experiences to help others navigate this difficult disease.
Those that are caregivers to loved ones (excluding the current moderators) most likely withdraw from communicating for one reason or another when and if the medical situations changes.
In contrast to the US where "advocacy" for various causes is hailed, supported and respected, various, other countries are stifled by their cultural and political believes and their various regulations.
We have witnessed this recently at the European Congress for Cancer where Patient Advocates were not allowed to enter the exhibit hall. Entrance was denied due to the Trade Protection of the European Union.
Given the rarity of occurrence of this disease, patients and caregivers often are isolated, lost, bewildered and frightened and discussion forums, such as ours rarely expand beyond a handful of people.
Having said all of the above, I strongly believe that we can continue to change the world of Cholangiocarcinoma. We must find a way to implement the changes needed and unite the global patient community in order to facilitate improved interactions for patients and caregivers touched by this cancer.
We welcome any thoughts and suggestions because; together we can make the difference.
THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER