Topic: Proton therapy

I have an upcoming appt with a surgeon at MDA to discuss putting in a pump and doing Proton Therapy.  Does anyone have any experience with his and/or know anything to share about it?

Thanks smile

Re: Proton therapy

Danna...I hope for others to come around and share experiences with us.  In the meantime and if you are up to it, the "Search" function revealed some of the below.
http://www.cholangiocarcinoma.org/punbb … 08&p=3

http://www.cholangiocarcinoma.org/punbb … 08&p=2

Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Proton therapy

Danna,
I have a liver Infusion Pump, but not sure if that is what you are talking about. I never had proton therapy with it. At least as far a I know. But if it's a similar pump, I may become interested in how this is done.
I hope someone else knows of this. If not, please keep us informed, as maybe it's a new slant on the war against cc!

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: Proton therapy

Hi All,

Personally I don't know about Proton therapy but am aware of a place in New Jersey called ProCure - www.procure.com - that specializes in Proton therapy.  It's located in Somerset, NJ and also has offices inOklahoma, Seattle and Illinois.  If I remember correctly, when I checked it out many months ago, I was not eligible because I had Stereotactic Body Radiation Therapy (SBRT). 

A lot of the radiation oncologists that staff the NJ location have done residencies at Memorial Sloan, Mass General and other well known cancer hospitals. 

Back in March 2013, I spoke to a surgeon at Memorial Sloan about Proton therapy and he told me it is a step up from radiations such as SBRT - much more precise in targeting the tumors.  Memorial Sloan is suppose to be either building or acquiring a building in the NY area, by the hospital, to do Proton therapy.  I think 2015 was the date he mentioned to me.

Mary

Re: Proton therapy

Thanks for bringing up this therapy. I had not heard of it. Sounds promising. Please keep us up to date on your treatment and all the best to you!
Willow

Willow

6 (edited by marions Thu, 12 Dec 2013 13:04:23)

Re: Proton therapy

Many centers offer this type of therapy:
http://www.proton-therapy.org/map.htm

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Proton therapy

Thanks everyone!  I will update after my appointment on the 20th