Topic: Declining Fast
Just last week Friday my husband seen his ONC and she suggested hospice. Hospice came that evening for a consultation. Monday he signed up for hospice. He has already lost another 5 pounds, sleeps a lot and hardly has an appitite. The last 3 days he's been nausea a lot and has been vomiting. The nurse from hospice gave him a perscription to help with him being nauseated but he waits til he's real nauseous then he throws up once he takes the pill. They also have him on Ativan to help with the restlessness.
It just tears me up seeing him dwindling away so fast. In three days he lost an inch from his arms and waist. The nurse told me today she can see that he's declines every day and she just started coming in. Hospice was only going to come twice a week but after she seen him today she said she figures she should come three times a week.
So far everyone i have met through hospice have been really nice. We had a social worker in yesterday and she talked with the kids and I. The social worker said she was going to have another lady come in that works with kids on a regular basis come in. She said the other lady deals withs kids all the time. My daughter said she would give it a try and talk with her but my son told me there was no way he was talking to anyone. I dont know what to do about it. I just asked him if he would please give them a chance. My son really keeps everything locked up inside. He told me yesterday he wishes he was the one sick. I told him that his dad or I would never want him to be sick and that we both love him with all out hearts. I really hope he opens up to the social worker. I am so scared.
The holidays are coming and I am just having a hard time to be in the Christmas spirit. I try my best for the kids and try to keep everything as normal as possible.
I am so afraid that I'm not going to do a good job with my kids and screw them up and fail. I just dont know what to do.
Thank you once again for listening to everything I say.