Topic: First Anniversary

Dear All,

Gratefully, today is the one year anniversary of my daughter's CC diagnosis.  She had a liver resection and whipple at 29 years old followed by 4 months of chemo. Her next scan is Monday at Sloan and all prayers are very welcomed.  We haven't learned how to deal with all of the nerves and sleepless nights  leading up to the scan- does it ever get easier?

Thanks,

January

Re: First Anniversary

January....scananxiety appears to accompany us, but with time it lessens a bit.  Know that a tidal wave of good wishes are heading your way.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: First Anniversary

Hi January, we call that scanxiety and everyone gets it before a scan. Perhaps do something like going to lunch or a movie. Sending you best wishes for a perfect scan! And for passing that news on to us when you get it!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: First Anniversary

Thank you-  and hopefully I'll be able to do just that!

January

Re: First Anniversary

January,
I don't know if the anticipation before a scan gets any easier. This is a milestone filled with hope.  Wishing your daughter the best... A clean scan.
Willow

Willow

Re: First Anniversary

Wishing you wonderful scan results.  Lots of prayers and blessings heading your way.

Hope, love, strength...2013 and for the years to come, Porter.

Re: First Anniversary

January,

Lots of positive thoughts and prayers coming your way.  Hoping for the best results on the scan.  Keep us posted. 

Love & Hugs,
Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

8 (edited by Pamela Fri, 10 Jan 2014 09:32:23)

Re: First Anniversary

Dear January,

I don't think the anticipation before or after scans ever gets easier. It is such a huge deal!! I remember the sick feeling before the scans and while waiting for the results. I also remember the joy or heartbreak after finding out the results. Here's to only having JOY!!!!

Hugs and love,
-Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: First Anniversary

January,

I have lived with scan-xiety since 1994 almost every year.  Most recently after my CC diagnosis I had scans every 3 months for the past 3 years.  Now I am on yearly scans.  The scanxiety rises and falls with the news from the previous one for me. 

It's good to use distraction and not project bad news before the scan.  I try to remember that fearing the worst does not change anything.  it is what it is.
Easier said then done for sure.

My best wishes for good news!!

-Randi-

Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.

Re: First Anniversary

January -
Even my husband who seems unflappable at times just admitted some scananxiety to me the other night. We have one the 31st to see if he will continue chemo, do radiation or just monitor. I already knew I had it. I find some relaxation exercises help me to get some sleep before.

Keeping my fingers crossed for a great scan. And congrats on one year.

KrisV

Any advice given is based on my experiences and should not be substituted for any medical recommendations. Please speak with your provider before making any changes.

Re: First Anniversary

Dear Kris, I am wishing for good news, to you, one of our power couples,  from the upcoming scans and will be crossing everything including my eyes!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: First Anniversary

Thank you Lainy. I am trying really hard not to obsess over it but sometimes it's hard.

KrisV

Any advice given is based on my experiences and should not be substituted for any medical recommendations. Please speak with your provider before making any changes.

Re: First Anniversary

Dear All,

Thanks so much for the good wishes and prayers.  We were at Sloan for Lauren's scan and blood results yesterday and met with her oncologist, Dr. Eileen O'Reilly.  We were thrilled to hear that both were clean and we have reached the milestone of one year post resection/whipple.  Lauren turned 30 and it was a very happy birthday.

Again, thank you so much for everyone who was so reassuring that the anxiety was to be expected, and the results, when normal, so joyful.

Gratefully,

January

Re: First Anniversary

Dear January I want to send a huge YIPPEE for your Lauren's great Scan results. Also a very HAPPY BIRTHDAY and there is no other present that can compare to the news she received. Thank you so much for letting us know and here is to more good news each and every time. YEA!!!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: First Anniversary

I am so happy for you, January, and your dear Lauren. Enjoy every moment spent together!!

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: First Anniversary

January, 

Great news on Lauren's scans!  Thanks for the update.  Hoping for more of the same in the future.

Love & Hugs,
Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: First Anniversary

Great news January! Congratulations indeed!!!

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: First Anniversary

Thank you all!

January