Congratulations on your one year success with this trial drug. I hope you find continued success and that you can keep the side effects under control.
It turns out we did not have to stay after taking the pill today. Blood work with the pill and then we could leave. Sorry we missed you.
We will continue on the trial for at least 2 more cycles - for Lynn, that means 6 weeks as each cycle for her part of the trial (part D) is only three weeks v. four weeks for the original part you are on. We are actually glad we will only have to wait 6 weeks for a new scan to assess whether the pill is working for Lynn. Since she had the allergic reaction to cisplatin, she is no longer doing chemo (the purpose of this part D). She is able to stay on the trial with just the pill, but it's at a lower dosage and the sponsor won't change the dose fort part D patients. So while the scan today showed 'stable' results, we have not gone a complete cycle with only using the pill. We have learned twice now that Lynn's cancer is very aggressive and grows rapidly without treatment. Dr Denlinger will not wait long to get Lynn off the trial if this lower dosage is proving ineffective.
In addition to the good news of a stable CT scan, the fact that Lynn will be off chemo for 6 weeks is quite nice. It will be the longest time period of no chemo since we began this journey a year ago.
Take care. We will see you soon.