Topic: Not So Good News Today
Had an appointment with my ONC today and looks like my 5 year cancer (I will not dignify cancer with a capitol C) free is over. 6 months ago I was clean and as of now I have a tumor (cancer) where the other GIST was. We do not know yet if it is a Gist or another type. It is growing quickly and is already 3 X 6 CM. The ONC also feels it is obstructing my intestines which could be why I am not healing properly from the Colitis. She is calling the Surgeon who did my first GIST and I trust him so much what ever he says works for me. I will have a ton of appointments this month and Robin will go with me.
I know I will probably have to do that surgery first then after I heal do the other tumor with is benign.
The ONC also is suggesting Gleevec (very expensive) until surgery to hold it at bay, it is the ONLY RX for a Gist. Again she will confer with Dr Runfola, and as she said now they are my team. And you may wonder why I don't have a social life! Wow, I just had a thought that this cancer is what could be making me so fatigued.
I have to admit the Happy Pills did not work at the ONC but I am OK now. Surgeries do not scare me its just that is so much to digest and I don't eat that much anymore.
That's the whole story. Love Me
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.