Topic: Second opinions
I thought I would check in and let you all know how my mom is doing as well as ask a question. When she was first diagnosed with ICC in December of last year, her surgeon said that she was a candidate for surgery and would have 3 months of chemo and then see if the tumor shrunk and talk about surgery.
She went last Tuesday for her appointment with the surgeon and he said that the tumor had not shrunk enough and that it's in a bad area where there are 3 blood flow channels. So now she will have 3 more months of surgery and then see what happens.
She and my family who was with her at the appointment are so overwhelmed that nobody thought to ask, "can the tumor still be removed even if it shrinks in its current location?" Have any of you dealt with this?
I believe she has an excellent surgeon, but we are not in love with her oncologist. It seems like he gives her false hope. He'll call to say that her markers have gone down but not really explain what that means. Therefore, she and my dad are thinking and telling everyone that things are looking up when they don't actually know.
I'm also wondering about a second opinion. Is this definitely recommended? And how does it work if you go out of state? I'm looking into MD Anderson, Barnes-Jewish Hospital and trying to find somewhere in the Los Angeles area because that's where I'm located.
I would really love and appreciate any advice you all have!! Please, please, please! I know that time is of the essence and I truly want to do all that I can for my mom. Thank you so very much!