Topic: An update. It's been a while!

Hey all,

Well I haven't posted on here in a while but I do check in as much as I can. Life is so hectic this side of the pond that I hardly have time to breathe at the moment. 

Recap on Mum's treatment to-date. Diagnosis: ICC stage 4 - contained within the liver at present. Three rounds of gem/cis - stable disease. Then a little wait to have some more scans and consider the ALPPS procedure (two-stage liver resection), but in this time a few more satellites grew, so surgery is currently out.

Next stage, today, our surgeon is considering SIRT, and the board meet in two weeks to consider Mum for this treatment. They want to see whether they can downsize the big tumour on one side of the liver, and then remove it. Then another dose of SIRT on the other side of the liver, to hopefully downsize and remove. I guess that this would be the absolute best case scenario but we're not holding our breath as nothing has worked out so far!

Anyway, i'm wondering whether anyone has any positive experiences with SIRT? From what i've read on here before, there are some variable views as to how effective it is. Saying that, we currently have no other options as the NHS is pretty limited it seems.

In good news however, Mum continues to be symptom-free. Long may this continue!

Best wishes to all,
Jules

Re: An update. It's been a while!

Hi Jules, I know nothing about SIRT but wanted to say that it was good to hear from you and get an update on your mum. I am glad that she still has options as far as treatment and hope that it all goes well for her.  And wonderful to hear that she is symptom free. Take care and hugs and blessings to you all.
Porter

Hope, love, strength...2013 and for the years to come, Porter.

Re: An update. It's been a while!

Hello, Hello, Jules! It is so good to see your smiling face again. I am so happy to read that Mum is still symptom free, what a blessing that is! I can't help on SIRT but we both know you will be getting some answers here. Best of luck to your Mum and I am so very happy for the update!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: An update. It's been a while!

Hi Jules,

No personal experiences on SIRT to pass on myself, but I am going to a conference on Friday where SIRT will be one of the discussion topics at the conference so I will report back here what I learn on it.

My best wishes to you and your mum,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: An update. It's been a while!

Hi, my mother had SIRT 5 weeks ago and follow up scan is tomorrow.  It may be too soon to tell much, but will let you know. She was extremely fatigued for 3 weeks after treatment but feeling fine now.

Re: An update. It's been a while!

Jules....wonderful to hear from you again. We had numerous discussions on SIRT treatments.  I thought to give you the link:

http://www.cholangiocarcinoma.org/punbb … 1580583893

Good luck and please stay in touch.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: An update. It's been a while!

Hi Jules, sorry can't help on the sirt tax but it's good to see you here and glad that your mum is symptom free.

Clare

In the stars now . . . .