Topic: Newly diagnosed and confused about next steps
My name is Mike, age 54, and I was diagnosed with cholangiocarcinoma last week. I've been in/out of the hospital numerous times since February having had 5 ERCPs and finally surgery last week where it was determined that my situation is inoperable. I have a mass covering the bile duct and a mass inside the liver affecting left and right hepatic ducts. There is no evidence that the cancer has spread. I was referred to Oncology who are now recommending a treatment of radiation and chemo (Xeloda) followed by chemo (Gemzar). From what I have researched, this treatment does not seem to have a high success rate. I am interested in participating in a Clinical Trial but it seems overwhelming trying to understand how to find one that would be a good fit. I've heard good things about immunotherapy and saw the Melinda Bachini posts. My Oncologist did not seem to know much about Immunotherapy. Anyone have any advice on if/how I can pursue this type of treatment. Thanks in advance for any help and advice you can give me.