Topic: The New Website
The first three months after Mark (my brother) was diagnosed I burst into tears many times as I had so completely immersed myself in research on his behalf that exhaustion, frustration and a desperate need to provide him with some hope often overtook me.
When Rick and I decided to do the discussion board, it was out of a need for us to connect with other families and patients that were suffering as we were, in the hope that perhaps we could find ways to share research and general information so that the burden could be spread and the load lightened.
The intent for this website was two-fold, that no one, having received a diagnosis of cholangiocarcinoma would have to feel alone and overwhelmed. And that we could gather all of the pertinent information and research into one place. That being said, we certainly won't be able to cover everything, and we will all still feel alone and overwhelmed at times, but we've made a good start and there is much more to come.
Both of those things have come to fruition and now we have additional goals as well, they are much bigger then any of us thought possible but I have no doubt that they will happen.
I wanted to thank everyone who has worked tirelessly on this project, especially Rick and Sara. The three of us are bonded for life over this labor of love.
Want you to know that as new updates and information sections come on-line we will put a post on the website so that you can check them out and feel free to give your suggestions.
Much love to you all