Topic: Introduction - My husband is diagnosed
I have joined because I want to learn about this disease, what helps it, what doesn't, what I can do to help him feel better, find out if we can help him get well and all of the hundred other things that I need to learn in order to understand what he is going through so I can be effective in my care for him.
My 72 year old husband who has been known to have PSC for the last 15 years was diagnosed with an inoperable Klatskin type tumor. It has spread to his liver and to his lymph nodes. He has completed his first round of chemo (cisplatin and 1/2 strength gemcitabin) after having a metal stent to help his liver drain. At first the meds after his chemo really energized him and he felt he could still be active, but the first treatment of the second round has left him with exhaustion and he's running a fever off and on. He has days where he sleeps all day and all night and other days where he is tired but able to be interested in what's going on in our home.
I have been looking at this site for some time. I appreciate everyone of you who has shared their experience.