Topic: Patient Registry – the greater the participation, the more “you” learn

Information entered by participants in the International Cholangiocarcinoma Patient Registry falls under the protection of the HIPPA Law.

Registrants have the opportunity to obtain de-identified information on others in regards to the various treatment options and pre-existing conditions as well as a history of diseases not clinically proven to be linked to this cancer.

It offers a wealth of information; you may find some similarities to your very own condition.

Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Patient Registry – the greater the participation, the more “you” learn

Thanks for pointing that out Marion, very important.

Hugs,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.