Thank you Sophie,
I'm glad things went well for you.
Just looking down the road at some options if there are any. My dad has been on Gemzar and Xeloda and his CA19 number went down from 1443 to 883 in about 2 weeks. Not sure what to think about that. During all this he had an infection due to a plugged stent. He has stopped the chemo and is on antibiotics now until the fever goes away. I hope he gets that cleared up so he can get back on track with the Chemo before his cancer no longer responds to it.
We have a meeting with John Hopkins next week to see Dr. Geshwin. Has anyone had any experience with him? I think they are going to offer him something like the TACE program.
My dad is not really a computer person. I would like to find him someone that he could call and talk to about positive treatments and this disease in general over the phone.
The reason I wanted to bring this up is this:
If you ask a doctor, son, daughter or a fellow cancer patient their opinion, you may get 3 different answers made for different reasons. I.E. clincal data, emotion, experience, all of which are important and are needed to answer your questions.
If there is anyone out there that would be interested in this, please email me your phone number and a good time to call and I will pass your information on to my dad.
I would like our website to offer a phone support for the non-computer people. There is something to be said for that one-on-one conversation.