Topic: Hello to all Bile Duct Buddys

Hi ,
I'm 45, and its 6 months after my op,(Liver sectioned,reconstruction and a replacement blood supply to the liver).I live in the UK,and at first they said it is a rare cancer, it hard to track and you may not live past 2months without the op. If you do get the op, you may last 6 months plus but may need chemo etc. Up till now I couldn't find many people to ask, or support on what they have told me. SO HELLO, Im lucky so far as following my op I've not needed any chemo, and todate doing very well (crossed fingers, as I look upwards). I use the term BDB's due to a nick name while in hospital. There were 3 of use with the same operation marks( like an upside down Y). When I went onto the Macmillan site the term seemed to fit well,due to there only been 2 people with the same cancer. Since finding this site it seems only fitting to use the same.
I would love to talk to any would be BDBs to chat and say hi.
Thanks for reading this.

Best regards to you all
Michael

Re: Hello to all Bile Duct Buddys

Welcome, Michael!

My surgery was 01/07 (right lobectomy and cholecystectomy). I have not had any chemo either. You are more than welcome to read all about my history. Congrats on the surgery and for feeling better!  I, too, have been feeling good and hope and pray everyday for a cure for the BDB's not able to have the surgery.  My doc told me I now have a 50/50 chance at living for 5 years, and I plan on making it the best 5 years of my life! 

People on this site are the best anywhere!  You will find them very caring and helpful.  And you can be a ray of sunshine to others by sharing your great story!

Good luck to you and stay healthy!
Sue

Today is a new day. Congratulations, you are already a survivor!

Re: Hello to all Bile Duct Buddys

Hi Michael, welcome to the site.  It is just a pity that you need to be here.  As you are aware there are few of us from the UK.  Where are you from and where was your surgery done?  Great news that your surgery has been successful that is a major step forward.  Keep positive for the future.  I had not heard about a new blood source, what was involved in that?

The chemo question is a difficult one.  If you read my posts you will see that I have had two resections.  After the first there was no chemo but after the second I was started on a clinical trial with Xeloda.  However that only lasted four days as the Xeloda brought on an angina attack and I had no idea that I suffered from angina.  Given the choice I would accept chemo, radiation, in fact anything, after the surgery.  But in the UK, certainly, there appears to be a reluctance to do anything beyond the surgery.  It will be interesting to see if the clinical trial proves there is a benefit.

All the best

Ron

Re: Hello to all Bile Duct Buddys

Hi, my name is Pat and my mum (68) was diagnosed with klatskin on
April 10th 2007. Since then she's had a whipple operation and chemo. For a while she was doing really well. But we have been lied to by her physician. At this very moment my parents are off on vacation to the South of France thinking all is well although my mum is suffering from pain in her stomach, difficulty with digestion and constipation. Two weeks ago my mum had a CT scan. Her doctor told her that there was nothing to worry about because the scan showed no metastasis (don't know if this is the right word). After calling her general practitioner we received a very different story. There are metastasis in her abdomen, pancreas and small intestants. This means that my parents are on holiday thinking they have another couple of years together. I can only hope they enjoy this to the fullest, because when they come back my sister and me are going to have to tell them the very bad news. What is wrong with doctors? Right now I'm so heartbroken that I am being thorn between anger and total devastation.
I wish all of you who are suffering from this horrible disease and to all of your family and friends who are supporting you the very best. I wish you all tons of strenght to pull through this ordeal.

All the best
Pat

Re: Hello to all Bile Duct Buddys

To you Mickie...may all your reports be so uplifting.  It is always so good to read positive reports.

And to you Pat...I cannot believe a doctor could give such deceptive information.  He (or she) should be drawn and quartered.  I know I worry if my husband's doctors are giving us the whole picture.  It is not their right to hide/edit information.  I am so sorry that you will have to break this news to your parents upon their return.

Karen

Wishing all God's blessings!

Re: Hello to all Bile Duct Buddys

Hi Karen,

Our general practitioner gave us (my sister and me) the hard needed information this morning. Mum has matastasis in her peritoneum. So that is very bad news. He had (finally) received the results of the CT scan. He is going to help us break this news to my parents, because neither my sister nor me are emotionally able to tell them.

We are preparing for a very sad and emotional weekend.

I sincerely hope that mum can still have a couple of good weeks/months.

Pat

Re: Hello to all Bile Duct Buddys

Pat
My prayers are with you and your family. 
Karen

Wishing all God's blessings!

Re: Hello to all Bile Duct Buddys

hi,

My mum has been hospitalized today. The fluid build up in her abdomen has been drained. She's feeling alot better now.

She also knows that the cancer has metastasized into the peritoneum and that her live expectancy is limited.

My mum has proven today to be a very strong, courages woman. She has surprised me, she really has.

We've had a wonderful talk today, shared our fears, our hopes, our sadness. Told my mum that I love her dearly, she told me the same thing.

Although the time we have to spent together is limited, it will be lived to the fullest. There's no subject off limits anymore. I know now there is no stronger emotion, no stronger feeling than love.

Pat

Re: Hello to all Bile Duct Buddys

Pat ...  Sorry to hear of your Mum. I'm sure she feels better now that the fluid is drained.  You could not have put it any better "there is no stronger feeling than love " and giving a much as you can.  I wish Your Mum and everyone God's love and strength.

Jeff G.

Take it to the Limit,One More Time! (Eagles)