Topic: fatigue

I am a little nervous because my on going fatigue has increased quite a bit over the last few weeks.  Lately it is  hard just to stay awake during the day never mind getting anything done.  Maybe its the rainy weather ....but it does make me a little nervous because before they diagnosed me with cc I felt pretty much the same.  Maybe I am paranoid and think too much about  the possibility of it being back... Anyone else have this type of fatigue...I am not on chemo anymore,,,so can't blame that  . thanks deb

Re: fatigue

Hi Deb, Charlie has been battling cc for almost a year now and has had many procedures.  He is fatigued a lot.  He naps when he needs to.  He doesn't have the energy he had before cc and may never have it again.  Don't be too hard on yourself.  If it gets worse and you're still worried, talk to your doctor or nurse about it.  Maybe they can give you some pointers or set your mind at ease.  Take care.

Carol

Re: fatigue

thank you carol for the encouraging words...wish I could nap when I want except I am still a mom who needs eyes on the back of her head...I have adopted 2 spec.needs children who are now teens and 10 y/o son.  Never a dull moment around here..just exhausting ones smile I am 14 mos out from diagnosis but drs feel that I had undiagnosed cc for at least   5 yrs.  I hope your husband feels better...he is in my prayers.   lets all get a good nights rest. sweet dreams to all  deb

Re: fatigue

Hi,
My husband has had cc since 2005. He is on chemo and like you has extreme fatigue. It's not only during treatment but during the times between treatments.

I am absolutely amazed you are able to do anything BUT sleep. Have you had your Dr. check for anemia? Chemo destroys the red blood cells also.

Do you have anyone who can come in and give you a hand every now and again so you can just sleep? I don't know where you live but try contacting the hospital in your area and see if they have any volunteers willing to come to your house and help out.
Also I would suggest contacting the Cancer Society in your are to find help.

My prayers are with you. I hope you find help soon.

God Bless you and God heal us all,
Charlene

Re: fatigue

Hi Charlene,           It is so nice to have people who understand how difficult it is living under the cloud of cc?  I think that people figure that just because you are no longer receiving chemo/radiation that you should be fine and able to do "anything" even my own family.  Maybe it is their way of coping or dealing with the fear..I lost some dear friends after my diagnosis.  I realize that it is frightening to think about ones own mortality but geez why run away when we need our friends the most.? It is not only physically draining but the emotional toll is exhausting... I have never been good at asking for help ...I am better at giving than taking. I will have to learn to ask. Today I feel good and I will take advantage of that and enjoy the sunny though chilly day...then go to bed as soon as my kids do! smile  Hugs and prayers to everyone! Deb

Re: fatigue

Deb, I know exactly what you mean.  People mean well, but they are always telling Charlie how good he looks...they just don't know what to say.  They seem shocked when he's sick because he looks so good.  They just don't get it and I hope they never have to 'cause it's hard and I wouldn't wish it on anyone.  You do have to ask for help and allow people to help you.  I'm sorry you went through losing some friends.  Enjoy the sunny day.  My heart goes out to you.

Carol

7 (edited by JeffG Mon, 05 May 2008 12:00:38)

Re: fatigue

Deb ... Along with chemo treatments a few other things that will lower your platelets/red cells/ make you tired all the time.  depression and not wanting to admit it, Forusimide(lasix), given for fluid retention/ascites, dehydration and pain medications. Also anything that messes with your electrolyes.  I'm trying gatorade myself and going to see if I can cut back on my lasix as well.  There are some option you can discuss is get rehydrated every couple weeks, get medication to boost red cells, ( think it is called procrit not sure), discuss getting a transfusion, and if on lasix see if you can reduce. Also anti-depression medication.  Just a few ideas to share with you and everyone else. 
God Bless,
Jeff G.

Take it to the Limit,One More Time! (Eagles)

Re: fatigue

Jeff,first of all how are you feeling?  I have not read much recently so I sure hope you a doing well.  Now I'd like to thank you for your advice about my fatigue...I did get a chuckle out of your comment about depression and not wanting to admit it.  We all try to be so strong don't we?   I will try drinking more water and see if that helps..maybe I am dehydrated..could explain all the leg/foot cramps I get over the last 2 weeks....  thanks again;)deb

Re: fatigue

Deb-the naturopathic doctor gave Dave some L-carnitine a supplement that is supposed to help with fatigue as he has terrible fatigue all the time.  I really push him to keep hydrated too which can make a difference.   They wanted him to try ritalin, but he said no to that.  Dave always says "what good are your friends if you can't use them", so call up and enlist help as sometimes people don't know what to do to help until you tell them.
Patrice

Re: fatigue

Deb,
Joe has had cc diagnosed for almost two years now and has just started conventional chemo after trying alternative which was good but just got too costly.  His new oncologist saw him in the hospital when he had sepsis and we really liked him.  When we saw him in his office the first time last week he said he wanted Joe to walk two hours a day.  Joe was hardly walking in the house back and forth to the bathroom and was even weaker after being in the hospital with the blood infection and internal bleeding.  But he told the doctor he would try.  The first day he walked 6 minutes on the treadmill and had to stop. Then he did 6 more minutes. That was it for the first day. The doctor promised him that if he woud walk each day til he saw him the next week he would feel much better. Joe came home from the hospital with about 15 pounds of fluid in his abdomen which I thought would have to be drained.  No, it went away by itself.  He walked probably less than a half mile each day until Monday when we went back to the doctor.  The doctor asked him specifically how much he had done.  Then he said he wanted him in 8 weeks to be able to run 8 miles.  Of course that was unrealistic, but Joe admitted he was much stronger after trying for the first week.  So yesterday we walked for a half hour outside (it was a beautiful day).  Before Joe started walking, he was sleeping about 6 hours during the day in two hours stretches.  His blood counts were low.  This Monday, his counts were better, he looks better and they were able to start chemo.  Now I am not telling you what to do but Joe thought he couldn't possible walk but once he started he realized he could do some.  Don't know if you have tried walking but it has made a difference with Joe.  He even went without a nap all day yesterday which is a first.  By the way, we have revised the doctors goal to 3 miles in 8 weeks.  Of course we are older and don't have to run around after kids.  Maybe that gives you enough exercise  but I think getting your blood pumping helps pump out the toxins in your body.  Hope this helps some.  I love reading the advice and things that worked for other people.  I am the caregiver and Joe never gets on the site but it gives me lots of hope and help.  God Bless  Mary Anne

Re: fatigue

that is absolutely amazing that you hasband is walking so much...my surgeon had also said that walking is the best exercise.  I actually just got a manual treadmill over the weekend for free from craigslist.com  My first few attemps on it have been a little scarey...almost flung myself over backwards.  I will need some practice wink Thanks for the encouraging words  best of luck to you both  deb

Re: fatigue

Hi Deb,
Feeling a lot better now.  I did cut back on lasix med to one every other day.  The doc won't know if no one tells him. Ha!  Still eating like a pig.  Vacummed the whole house today. Did 4 load of washing ,dried ,folded and put away. Rotated and flipped matteress on bed. I find I sleep better when I do that. Nuts ain't I?  Watching my grandson today had ear infection so no school.  Mowed the front lawn and trimmed.  Backyard will have to wait a few days.  Will have chemo again in about three weeks if counts continue to rise and look good.  Glad to hear you are exercising does wonders.  If I don't stay active, oh I get so bogged down.  Ta Ta  for now! Hope your feeling better as well?
God Bless,
Jeff G.

Take it to the Limit,One More Time! (Eagles)

Re: fatigue

hey jeff,

you remind me of that old commercial .........geez, i can't remember his name...but, he went through a house like a white tornado. 

it's great you are feeling so energetic, especially with all you've been through and continue to endure.

i'm thrilled that i can actually read and post now that my head has stopped spinning.

thanks for all your contributions.

barb h

Re: fatigue

maryanne80,

thank you for posting about joe's walking progress.  you gave me the kick start i needed.  i finally got myself back onto my treadmill today.  although, i did have an excuse for sometime as i had vertigo for weeks and high blood pressure.  now, i am better and actually taking a 6 week vacation from chemo.  it scares me, but it may be the chemo that's causing some of the problems.

good luck to you and joe.  he's fortunate to have a trained nurse and loving wife to help him.  from your postings, it sounds like he knows how fortunate he is.

barb h

Re: fatigue

debrah,

about that treadmill, mine starts off really slow, around .6 mph.  it's so slow that i have to boost it up right away or i would get more exercise just walking   walking through our home.  perhaps there is some way to decrease the speed on yours.  were you able to get any literature about it?  if not, perhaps you can find some info on line or by calling the manufacture.  it's amazing that someone gave away a treadmill and hopefully you will be able to use it without getting injured.  be careful.

also, with having young children i would think you are almost on a constant run.  anyone battling this disease with young children to bring up should be wearing a diamond crown. 

take care,
barb h

Re: fatigue

Deb,  Mr. Clean with the bald head like mine Ha!
Tootles,
Jeff G.

Take it to the Limit,One More Time! (Eagles)

Re: fatigue

jeffg,

thanks jeff, mr. clean was the name i was searching for.  oh wellllllll, i don't have much memory left.

barb h

Re: fatigue

wow mr clean...do you happen to have any extra energy...my house is looking a little messy lately..  smile   your wife must love to have such a helpful husband...i am happy that you are feeling well and strong   keep up the good work!!!!

Re: fatigue

hi barb,  thanks for the great advice!  I do have another question though,  I saw you wrote about not having such a good memory....i certainly can relate which leads to my question: Is it true that the chemo I had can effect my memory because it is awful!  My eye DR said the significant decline in my vision may also be a result of the chemo.  I swear going senile and blind is not a  my choice of a fun time.  I am still trying to use my MANUAL treadmill...it is kinda dangerous either it is too fast or suddenly stops..i will need to look on line for the nordic trac direction.....happy mothers day to all the moms    deb i.

Re: fatigue

Barb ... who's memory is missing? We still have our memories just got to google the information sometimes.
Jeff G.

Take it to the Limit,One More Time! (Eagles)