Topic: Newly diagnosed cholangiocarcinoma
I was diagnosed last week with cholangiocarcinoma. A lesion (a little less than 3 cm) was found incidentally on a gallbladder ultrasound. I had never had any gallbladder problems prior to this and they are felt to be unrelated. I then had a CT scan, being reassured throughout that it was most likely an atypical hemangioma. A biopsy was then recommended and the results went back and forth for seven days...the very longest 7 days. I was then told that it was either gastric primary, liver, bile duct or pancreatic. I had a PET/CT scan that showed only the single liver lesion. My liver function tests are fine and unchanged from baseline and all tumor markers are negative. I'm scheduled to have a resection next Wed. 5/21. The surgeon said he would remove 1/3 to 1/2 of my liver and also do an exploratory and lymph node sampling.
At this point I am just holding on to the hope that this can be cured with surgery. It has been difficult for me to seek any information about this because it is so frightening. I was just living my life...no symptoms at all...and then this. It is just so hard to believe this is all happening. So, at this point, I am just seeking support in this very difficult time.
Thanks for being there!