Topic: New member diagnosed 1/18/208
Hi to All,
What a wonderful site. I am so excited to have found help. I was diagnosed with CC January 18, 2008. What a shock as I have always been a very healthy person and only 58 and 1/2 years old. My local surgeon referred me to University of Pittsburgh Medical Center, Pittsburgh, PA. The most wonderful and brilliant surgeon in the world performed my surgery February 14, 2008. I was one of the lucky ones in that Dr. Gamblin told me he was able to remove all of the tumor and get clean margins on both ends. He removed 60% of my liver and removed my gallbladder. Again I was lucky that my pancreas was not involved or any of my other organs. My problem now is that my local surgeon and local oncologist can't agree with my Pittsburgh surgeon and Pittsburgh oncologist about chemotherapy and radiation. Local says I need it, Pittsburgh says 'maybe not'. So far I haven't had any treatment beyond the surgery. I am waiting for a PET scan to decide one way or the other on additional treatment. I feel great now and have great hopes for the future. BUT my local surgeon has assured me, in no uncertain terms, that anyone who gets cholangiocarcinoma dies from it. After he cold heartedly told me that, I kind of feel like giving up. I would appreciate any information anyone wants to share about how long I might expect to live and if anyone else has survived without chemo or radiation. Thanks everyone.