Topic: Mother With Cholangiocarcinoma
Hello: My mother was diagnosed with Cholangiocarcinoma Cancer last summer and had surgery to remove the tumor. She has just learned that she has a new tumor that is seven centimeters (plus three other smaller areas) outside the liver in the space created by removing part of the liver in the surgery. She has been told the new tumor(s) is inoperable.
The prognosis is not good - six months with no treatment or if she doesn't respond to treatment. A year ever if she responds to treatment.
She just started a chemo regimine of just Gemcitabine.
She and my father are very discouraged and I want to do all I can to look into all options, as they seem to be accepting the prognosis given.
I have looked at the listings of clinical trials and plan to see if her doctor can determine if she would qualify for any. Also, looking into major cancer centers near us (we are in Kansas City) that may different things to say about what treatments may work for her. She is already very weak and tired and hesitant to travel for diagnosis/care. Does anyone have any experience with the Siteman Cancer Center in St. Louis?
We have a meeting tomorrow with the University of Kansas Cancer Center for a second opinion evaluation. Does anyone have any experience with KU and/or any suggestions on questions/discussions to have with them as we discuss treatment options?
Thanks in advance for any advice you have!